r/AlternativeHealth • u/moodywrites • 22h ago
Reducing stress on body as much as possible during eating disorder that is not expected to significantly improve - trying to heal chronic conditions
The situation I’m in:
I have multiple chronic health conditions that I’ve tried to heal over the years. I want so badly to be healthy and well. I’ve been embracing this whole crunchy, alternative, holistic health approach to healing. Incorporating conventional med as needed, but really trying to get to the root causes.
Here’s the problem: I have an eating disorder. I’ve had one for 10 years, since I was 12 and experienced ongoing SA (ages 11-12). I’ve been to treatment multiple times. Inpatient. Outpatient. I’ve been in therapy the whole time. I’ve done trauma work. I’m currently in EMDR. I’ve tried all the behavioral approaches.
I just don’t expect that it’s going to stop any time soon.
I have improved, and am more medically stable. I no longer eat a starvation diet, purge multiple times a week, abuse laxatives, etc. I’ve come a long way. But I have a long long way to go.
Unfortunately, it’s common for some people with EDs to not substantially improve, experience chronic symptoms, even with help and treatment. My providers are trying to help me take a harm reduction approach. This means minimizing damage as much as possible while I’m in this state.
My health right now
Basically, I’m in a functional medicine program trying to treat the root causes of my illnesses.
I have:
* interstitial cystitis
* histamine, oxalate, and FODMAP and other food intolerances that exasperate symptoms
* IBS and bowel issues
* past gastroparesis with some residual symptoms
* pelvic floor disorder
* PCOS (no insulin resistance)
* adult onset celiac disease
* past hypothyroidism (now on low end of ‘normal’)
Plus:
* autism
* ADHD
* mood disorders
* and obviously, a raging eating disorder
According to testing, my root causes:
* H Pylori
* low stomach acid
* gut bacteria imbalance and slight overgrowth
* unsure about parasites
* Candida
* Mold (which is apparently a huge driver of my symptoms)
* adrenal fatigue
* leaky gut
* nutrient and mineral deficiencies
* slow gut motility
* hormonal imbalance (low estrogen and progesterone, high testosterone)
* poor liver detox
* poor digestive capacity, low stomach acid, impaired fat digestion
* high oxalates (despite low oxalate diet)
* copper imbalance
* mild heavy metal exposure
* nervous system dysregulation
* pelvic floor dysfunction
Stressors on my body/what ED looks like:
* binge purge cycles. I have a cycle once a week where I binge and throw up a few times in a row. I try to keep it to once a week but occasional I also throw up 1-2 times more throughout the week
* eating around 1700 calories a day for a months now. This is an improvement from 1500, which was an improvement from 1000-1200.
* Trying to gradually increase food intake and metabolism through reverse dieting. Not going so well. I gain when I increase.
* running a few times a week for 20-50 minutes. I love running and don’t want stop completely.
* I used to fast until 5 pm once a week, but stopped doing that recently
* I am completely, utterly opposed to (and dread) gaining any weight or body fat. I am not underweight and already significantly struggle psychologically with maintaining my weight.
* I am on several medications, including psych meds. I have horrible reactions every time I try to get off of them, and believe me I’ve tried.
* restrictive diet due to illnesses: low histamine, low oxalate, low in digestive irritants, no meat, little dairy, no gluten, no soy or legumes except pea protein, limited grains, limited nuts and seeds, etc
* my diet looks like: a lot of specific fruit, some specific vegetables, pea protein, occasional seafood, raw kefir, low calorie semi processed foods, starches like potatoes and rice products, coconut products and dairy alternatives
* can go into more detail about my diet or medications or symptoms if asked
Efforts I’m already making:
* keeping my ED at bay enough to be medically stable (1700 calories, reducing purging, etc)
* taking multiple supplements, including temporary ones to directly treat my root causes (on H Pylori protocol as of now)
* making dietary and lifestyle changes
* nervous system regulation, stress reduction
* eating carbs before runs and carbs and protein after
* eating every few hours
* considering eating a more substantial breakfast, right now it’s just fruit
* increasing strength training
* taking things to soothe my gut lining, stomach lining, esophagus and digestive tract: DGL licorice, slippery elm, marshmallow root, l glutamine, etc
* taking nutrients such as a B complex, cod liver oil for vitamin A and D, lactoferrin to increase iron absorption (I have low ferritin), etc
* taking bovine thyroid
* taking chaste tree to increase period regularity
I need to get my body out of this fight or flight state, and reduce the damage I’m doing to my gut, immune system, hormones, etc.
The basic question:
How do I minimize the stress my body is going through, and achieve the most healing possible while in this state? How do I reduce damage done? How do I physically heal while I’m struggling?
And how much healing of my conditions can I realistically expect? Even after treating the root causes, if my ED continues, will I be able to get better?
I know it’s going to probably still affect my gut symptoms. I can’t heal my gut when I keep destroying it. What about my interstitial cystitis and food intolerances? Can those get better?
This is not me giving up progress. This is me recognizing what has been my reality: that’s it’s going to be slow, non-linear, and a long term struggle before I get there. I just want to do the best I can to heal my body meanwhile. I don’t want to be chronically ill until I finally get my ED under control.