Hi,

My mom (46 y/o) was diagnosed with decompensated cirrhosis following a hospitalization for a GI bleed. During the hospitalization, she developed pretty bad stomach and leg/feet swelling which I was imagining was ascites. They put her on a diuretic after the hospital stay and just recently increased it to 50 mg spiro and 20 mg lasix. While they don’t visibly have seemed to help, she hasn’t gained any weight over the last week and has been losing small amounts (0.5lb ish) each day.

They also scheduled for her to get a paracentesis today to help relieve some of the stomach swelling. Howvwer, upon ultrasound of the stomach they said she didn’t have enough fluid in the abdominal cavity and that it was mostly sitting in her skin tissue instead, so they couldn’t do a paracentesis. Has anyone else experienced this? How did you manage getting the fluid out without paracentesis? I want to trust that the diuretic is working since we haven’t seen reverse progress but I’m also worried that maybe she’s losing weight from muscle loss too since she can barely get around with all her swelling. She is still eating fine and is getting a lot of protein but she gets full easily from the swelling.

Any tips on how to get this managed are so appreciated!

Hey all,

So in the next year or so, I will be undergoing a dual heart and liver transplant. I was born with HLHS and developed FALD over time, and now having cirrhosis etc, Ive deteriorated enough that it’s time for a parts swap. I’m 31M fyi.

I’ve only recently decided this with my doctor, so I have some questions (will be talking to them as well obvi). I’ve read that being as fit as possible before transplant is good for both the procedure and recovery afterwards, have people found that to be the case? What other things can I do to prepare?

What does recovery look like? How long? All in the hospital or? Just curious about how everything works and how I can best train and prepare for the most optimal outcome and such. Any information would be amazing. Thank you!

In the beginning of diagnosis ... plus im 35 days completely sober ...is it normal to have trouble sleeping ?? I mean I just am so awake ..like a night owl.. I dont want to take anything to sleep medicinal wise ... how do yall deal,?? How long did it take to finally sleep normally? I mean I can crash at 3 a.m wake up at 5.am and do it all over again every day for the last 5 days... I know sleeping is healing but maybe its my mind racing over everything I have been thrown at all at once ... please someone sedate me !!! 😆 🤣

Hey all, Its currently 11:07 pm here, how is everyone doing ? Anything positive to share? I also have a question, have you guys experienced an enlarged spleen with compensated cirrhosis? I was diagnosed in June and one thing I found interesting is I have no enlarged spleen?

So signs of portal hypertension. I have a severe fear of sedation. I don't know if I have varices or not.