I’m excited and anxious. I’m also wondering what to expect in this consult with the surgeon. Will I have to do an MRI? I’ve never had one. I was told by my audiologist that I’ve been wearing a hearing aid all my life so the auditory nerve should be intact and my surgeon may not require one. In case he does, what’s that like and how long do they last? I’m not keen on small spaces. I’ll call tomorrow and ask for more details but in the meantime I’d love to hear your experiences. Thank you in advance.

Had my surgery 8/19 and got activated with the N8 today! I am somewhat able to understand speech - at least the shape of words if that makes sense, but everything sounds like Darth Vader lmfao. All of my impedances were perfect apparently, and all 22 electrodes are working. I’m on program 2 already, since program 1 sounded a bit too quiet. Anyone got any podcast or audio book recommendations for rehabilitation? I’ve got the Cochlear Copilot app already.

I was one of the first to get an N8 in November 2022, so we are 4 years out now. Usually there is "leaked" info when Cochlear has something in the works but the fact that there is no news I can find makes me wonder what's going on with Cochlear. We are living in an exciting time with AI driven medical breakthroughs so I would love to see an N9 that is smaller and with improved algorithms. Any input welcome but please refrain from negative or "Debbie Downer"/snarky comments.

Our newborn was diagnosed with profound bilateral sensorineural hearing loss at 3 weeks old, he’s now 2 months old. It’s very likely we’ll go down the cochlear implant route. We’ve seen lots of stories of children under and around 1 year old receiving implants, however, our audiologist said the implant team in the hospital we’re in aim for implantation around the age of 2. I have no doubt the implant will still be effective at the age of 2 but don’t see the reason why we’d wait a year when he could be accessing sound and speech in that important developmental stage. We’re in the UK and have already also started learning BSL as a family.

Would be great to hear from anyone with insights / experience on having implants fitted and activated at 1 year old vs 2 years old.

I have an AB Nadia CI.
Does anyone know what these are for?
I thought this was a battery so I placed on charger overnight and it didn’t charge. The other piece I have no idea what it is.

I’m due for surgery soon and the clinic have been recommending a dietitian/nutritionist for a consultation at my own cost (this is not covered by insurance).

It’s called a surgical advice and recovery package and costs £200. I just wonder what magical advise they will provide other than eat nutrient dense food, lots of veg and avoid processed food.

has anyone had any experience of this kind of package and can tell me what kind of advice they actually offer. my surgeon has not recommended it but the clinic itself is promoting this service quite heavily.

3rd months in and my implant only gives me much muffled tinging sounds. I can’t hear anything when i stream audio to it.
I lost my left hearing 40+ yrs ago. Prior to this, i had conductive hearing aid which worked well, except i get skin inflammation around the abutment. Instead of replacing that with an underskin magnetic conductive hearing aid, I opted for a cochlear implant. I can’t hear anything useful out of my implant and if i wear it for too long in loud high sensitive mode, i end up with a headache. Is this normal?

I am in the job market for the first time in seven years, and for the first time with my CI or even major hearing loss. My hearing severely degraded over last 5-6 years and I went from using HA sin 2021 to the CI (and one HA), which I got this past May.

For job seekers (or even recruiters or hiring managers): when did you disclose your CI/hearing limitations in the hiring process?

Any personal anecdotes or advice are welcome.

I have an N8 and want to connect my implants to my pc, but they still haven’t rolled out a Bluetooth LE update. It’s been 4 years since they’ve released 😭

I am going in for audiological testing to determine if I qualify for CI. Will they be doing that spin around test and blowing in my ear trying to cause nausea? I swore I’d never go through that again, but is that what I’m facing?

I was just implanted on the 14th. Are there any FB groups that anyone can recommend

We recently started our daughter (6 yo) in soccer. Looking for good headband recommendations that keep the processors securely in place during running and sports for a child.

I was implanted on August 7 and returned to the clinic on the 27th for activation and to get a new hearing aid for my other ear. We ended up going with MED-EL and the Starkey hearing aid. I opted for one each of the BTE and OTE processors, and my audiologist started me with the BTE. I go back in 2 weeks and we’ll do some adjustments and set up the OTE processor.

I know everyone says, “first day is the worst day, don’t expect to understand language.” I went in with that knowledge, but of course I was hoping — just a little bit — to be in that tiny minority who understands language quickly. I didn’t, but that didn’t stop it from being a really positive experience overall.

That evening, I read aloud to myself for half an hour. Just beeps. Woke up, watched a captioned podcast for 30 minutes and noticed about halfway through that some of the beeps were almost words. By the end of the half hour, more beeps were words, but I don’t know that I could have discerned what the words were without following the captions.

Just finished my 2nd round for the day, watching a video with a male voice instead of a female voice this time. Took about 10 minutes but I started picking up more words again. Not all of them, but some.

As I waited to see my audiologist, I watched one of the clinic staff talking with a delivery guy. I thought about how long it’s been since I could look at something other than a person’s face when they’re talking to me, as she did. I don’t know if I’ll ever get to that level of confidence again, but it’s a nice someday goal to have.

So I’ve been offered this CI in a public hospital after months waiting (it’s cheaper, like 66% cheaper), but I’ve heard so much controversy surrounding AB that I hadn’t considered the CIs. I honestly don’t like the typical processors with earpieces, and was thinking about getting Cochlear or MedEl in order to get Kanso or Rondo.

How old is this model (Mid Scala)? Should I be concerned about advanced bionics phasing it out? My insurance doesn’t cover CI, in my country insurance companies simply don’t cover CIs, so I’m wondering if I should just pay full price with a ENT with private practice.

Hi! My daughter is currently 21 months old and 6 months post activation.. so far I feel like she has had great response to sound (her right side seems to be doing so well -and the audiologist explained to me that there was still lots of room to adjust mapping and increase). We have had 3 mappings so far.. unfortunately her left ear is not responding as well and we may be looking at implanting an ABI on the left in the future. However -the audiologist said an ABI may not be overly beneficial as she should eventually be able to have full access to sound on the right side.
She has almost mastered all her LING sounds (she’s just struggling with the ‘s’).. she has a few words -maybe 25-30? And tons of sign language..
the most recent audiogram showed detection levels in the 55db although the audiologist suspects her hearing is more likely in the 45db range..
I guess I’m just looking for support/advice/encouragement… her speech therapist made me feel defeated today when she said she was disappointed in her recent audiogram.. and that she felt the thresholds should be better for her considering she’s 6 months post activation…
I just thought my daughter had been doing so well and I was so proud of all the progress she had made.. her audiologist feels the same -she averages 9.5 hours of wear time daily.. but listening to the speech therapist today and her concern over the audiogram just really upset me… any thoughts/insight or words of encouragement would be so appreciated!

So I have Menieres and my right ear has suffered severe/profound hearing loss for the last 12 years. Now it is happening in my left over the past year. Doctor is recommending a cochlear implant in the right ear. I feel I really need this as my left ear is now getting worse.

Anyone else have this same thing? What was the outcome after the inplant surgery and how did it change your quality of life.

Hi everyone.. my son is getting a cochlear implant.. he is 3 years old.. my family is not supportive as they are deaf and believe “he’s not broken no need to fix him”.. I am struggling to make a decision for him… I would love to hear peoples opinions l.. those who got one, who didn’t get one, and got one and maybe had it removed.. I just want to hear it from other’s perspective, Thanks!

it looks like, in the UK at least, that the compatible accessory is the minimic 2+. this is pretty old, doesn’t have Auracast and annoyingly uses micro usb not usb c like every other device.

Theres conflicting reports that the multimic product is compatible with the Kanso 3. Some say yes and others say no.

This device seems more modern and has auracast plus usb c charging so you don’t need to carry any extra cable to charge the accessory.

any ideas if I can use the new multimic with Kanso 3?

it looks like, in the UK at least, that the compatible accessory is the minimic 2+. this is pretty old, doesn’t have Auracast and annoyingly uses micro usb not usb c like every other device.

Theres conflicting reports that the multimic product is compatible with the Kanso 3. Some say yes and others say no.

This device seems more modern and has auracast plus usb c charging so you don’t need to carry any extra cable to charge the accessory.

any ideas if I can use the new multimic with Kanso 3?

Hi all - I am new to this thread, but I’d really love some advice and positive personal experiences from people who’d like to share to help me process this. I’m 29 years old and I’ve had severe degenerative bilateral hearing loss since I was diagnosed in 2010. Higher-pitched sounds and tones are something I’ve always struggled hearing, but bass and lower tones I hear easier. I’ve lived with hearing aids for 16 years (I’m on my third pair) and have recently come to find that they are no longer helping me with day-to-day functioning. My updated audiogram I received last week has shown a continued and FRIGHTENING drop in hearing and word processing functionality in both of my ears (more heavily emphasized with my right one). My audiologist said my right ear is “practically useless at this point”.

So now I’ve met with my ENT to evaluate my eligibility for cochlear implants. (Surprise! I’m well past eligible) The conversation we had was extensive and she did not sugar coat the reality of my recovery post-op. I’m having trouble coping with the fact that I will need them, and especially since I’m a bartender and the essence of my job requires me to hear my customers and converse with people. My ENT said I will have my right ear implant first and then down the line once I’ve healed, adjusted, and re-taught myself how to hear language they will work on my left ear next (could be around 6 months to 1 year).

Is there anyone else in the food and beverage industry with cochlear implants? How has the adjustment been for you?
Will this severely impact my ability to continue working until I’m healed and adjusted?

I am trying not to get overwhelmed emotionally with all of this information I’ve been given - it all feels so heavy.

I lost my hearing on my right side just over a year ago in one ear. I still have hearing perception but lost over 90% of my hearing and my word recognition is sitting in the lows 10%. I just had my first appointment with my surgeon and I mentioned that one of my concerns is losing whatever little hearing I have left, as well as not being able to have headphones when I workout or having trouble being as physically active as I was. He said that a lot of single-side users end up not using their CI as it is not the same, what’s your experience with being a single-side user?

it looks like, in the UK at least, that the compatible accessory is the minimic 2+ is the accessory. this is pretty old, doesn’t have Auracast and annoyingly uses micro usb not usb c like every other device.

Theres conflicting reports that the multimic is compatible with the Kanso 3. Some say yes and others say no. This device seems more modern and has auracast plus usb c charging so you don’t need to carry any extra cable to charge the accessory.

any ideas if I can use the new multimic with Kanso 3?