First post! Please help

[u/Beneficial_Boat_9252]

hello everyone!

This is my first ever post on this website and I’m hoping somebody can give me some advice.

so for me, partial complex seizures started around the age of 14 or 15. I am now 32 with two kids back living at home with my parents. I have been through a lot with my epilepsy and it has been hard. in the past 17 years, the longest I’ve gone without a seizure was six months. so many tests and scans have been done. But none showing more than strange activity in the right frontal part of the brain during an episode. So they know where it comes from, but they don’t know why. And this honestly annoys me. Now as I’ve gotten older, we seem to figure out that during my menstrual cycle is usually when they happen more often.

During pregnancies, I don’t remember having one seizure at all, but as soon as I getting my period again, seizures started happening.

now I am tossed because I am finally in a great place with a great man and we were talking about having a baby in a year or two and I just found the medicine xcopri and it’s helping!! Anyone had an experience with Xcopri and pregnancy?? everything says it’s never been tested!!

[u/Soft_Cabinet_2656]

I am kinda in the same boat! on more than Xcopri but we are going to start trying for a baby and it's stressful so i'd appreciate any advice too!