I wrote a post here about my experience with this goddamn HIV situation and honestly, I did not expect to receive so many warm and supportive responses. Because of you guys the treatment is going very very easy! I found a lot of lovely people after my post even in my city LA. Love this community! Thank you. It really means a lot.
However... I also received a lot of messages from people asking what symptoms I had because they are experiencing symptoms themselves and want to compare them with mine. Please do not do that. This post is specifically not an invitation to compare symptoms or try to diagnose yourself based on someone else's experience.
There are no doctors here, and even if there are, I do not care if you are a doctor, a professor, or some divine level medical genius who can diagnose people by looking at their aura. You cannot tell someone whether they have HIV based on symptoms. If you are concerned about HIV, talk to a qualified healthcare professional and get tested. That is the only way to know your status.
I understand the fear behind this very well. I was very, like really very terrified myself. I bought a rapid test and then basically sat there with it for a week because I was too scared to actually use it. Finding out that you have HIV can feel like the worst thing in the world. But not knowing can be even worse, especially when you are relying on symptoms, guessing, or assuming everything is fine.
Please also remember that HIV symptoms are not some kind of fingerprint. Fatigue can be caused by a thousand things. A rash can be caused by a thousand things. Itching can literally mean your skin decided to be annoying that day. Someone can have completely different symptoms, and someone else can have no symptoms at all while feeling perfectly healthy. You could have a headache, a rash, zero symptoms, or be walking around with a huge smile and a fucking bow on your head. None of that can tell you whether you have HIV. A test can.
And there is one more thing I really want people to understand. Do not blindly trust someone just because they tell you they are on PrEP. Never make decisions about your own sexual health based solely on somebody else's word. People lie. People really fucking lie. And that's the reason I got HIV. Because of my own stupidity, trust and relying on luck.
HIV is not some magical exception where everyone suddenly becomes honest and medically knowledgeable. You would be surprised how many people can confidently say "I'm on PrEP, don't worry" while having absolutely no idea how PrEP is obtained, how it works, or sometimes even what the fuck PrEP actually is. So the mindset of "it's fine, he's on PrEP, nothing can happen" is not a good way to protect yourself. Protect yourself based on what you know, not on what someone promises you.
I am not saying any of this to scare or judge anyone. Quite the opposite. I understand the fear because I have been there myself. I know how difficult it can be to make yourself get tested when you are terrified of what the result might say.
So please do not try to diagnose yourself from symptoms, and do not let fear keep you from getting tested. Learn about HIV, PrEP, and treatment from reliable medical sources, and take responsibility for your own health. And remember, your results are negative? Great. Keep yourself safe. Your results are positive? Listen to your doctor and remember that this is absolutely not the end of the world. It is the 21st century. HIV is treatable, and with proper treatment, it does not mean that your life suddenly stops. And actually, quite opposite. After HIV I became more wise, kinda changed my points of view in a good way and live every day like it's last. And what about HIV? What's that? Me and my pills dunno her 💅
Take your medication, take care of yourself, and keep living your life.
If we all take this seriously, whether we are trying to prevent HIV or already living with it, then testing, treatment, knowledge, and prevention can genuinely bring us one step closer to fucking beating this thing. ❤️