r/MultipleSclerosis • u/StrygwyrSuperstar • 1d ago

Uplifting Small victory

Recently got eyes tested for some new glasses. The back of my eye images showed that my eye is nearly healed 100% my new glasses correct my vision to 20/20 again. Only took 6 years to recovery to this level. If you are earlier in your optic neuritis journey just know there is hope 🧡

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u/Prize_Lingonberry770 23h ago

Yeah something the same happened to me how common is this ?

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u/chamonix-charlote 20h ago

Did you get OCT testing during your optic neuritis and now?

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u/StrygwyrSuperstar 16h ago

Hi friend,

yes I had that testing during my initial symptoms of optic neuritis around 6 years ago now. The imaging has progressively getting better ever 2 year check up. Now it looks almost identical to my other eye. To add I don’t have any steroids during this first relapse as they weren’t sure it was ms or anything at time.

Just for context maybe this gives someone a bit of hope earlier on in their journey.

My feet went numb 2 weeks later so this was my first steroids dose and led to a quick MS diagnosis and I was on ocrevus within 5 months of the initial ON. Feet have fully recovered

My left eye still feels like it has a little bit of trouble with focusing quickly and I lose vision in heat or if I’ve worked out a bit too hard. (It’s like a shower door fog) it Comes back after I cool down or rest a bit.

20/20 is a huge success though

🧡

1

u/chamonix-charlote 15h ago

That is incredible to hear! Thank you so much for sharing.

I just had OCT and Fundus testing after optic neuritis, and much of my retina in my left eye is below the 5% of thickness and some below 1%. I’ve lost 10% of thickness in my left optic nerve extending to the optic canal. The pain and vision problems have been ongoing for 3 months now.

So amazing to hear that recovery is possible, I was really starting to think that this was my new forever, since some sources say recovery is complete by 3 months.

Congratulation on your recovery ❤️

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u/StrygwyrSuperstar 15h ago edited 14h ago

First of all I wish you luck and good eye health.

To add I had a lot of pain and half my vision missing during first symptoms and it’s slowly gotten better like a curtain going up and the pain is gone beside for when I’m very fatigue especially during that last month before next infusion . It can be sharp still but I don’t live with this on the day to day basis. Last image to this one 2 year window was probably like around 15% recovery so I think 3 months sources are probably really inaccurate at least from my personal experience as I’m still recovering in the background for 6 years.