I’m suffering with multiple orgasms and never being fulfilled. I want to see a doctor but I have no idea what to even say to my mother

I suspect I have hypertonic pelvic floor muscles and thats why I have something similar to this horrible sensation. But for those who DON'T have hypertonic pelvic disorder but have pgad, do you feel like that? Specifically women (men are welcomed to answer as well). I need to know please, as I am trying to narrow down the possibilities of what's causing my pgad like symptoms. I talked to a doctor and I'm currently getting meds for some other problem, but she plans to help me for this soon after and also refer me to another doctor. I have all the textbook symptoms, however, I noticed ever since then, I feel like the muscles are kinda firm like they are never resting. I dont mean constant muscle tremors or spams, I mean it feels like theyre just in a position thats uncomfortable, like theyre sort of clenched. They don't feel normal. ​​Im trying to figure out of this is also a pgad textbook symptom or if the symptom is only a hypertonic pelvic floor symptom which is contributing to perhaps the origin of my pgad symptoms.

I’m a 46 enby person with partial androgen insensitivity syndrome.

This is my first post and was just so excited to see this sub existed that I didn’t read other posts, so I want to be mindful of language and know that this is an extremely misunderstood condition!

I always have had tingles in my genital areas. I was diagnosed at age 4 with a “gratification disorder” as I was trying to get rid of the tingles. I tried to explain the pressure, the tingles, the releases to therapists as a child.

A believe, I first heard the term for PGAD via a Google search which brought me to a Grey’s Anatomy episode. I was like ok kinda not my experience. I get random flair ups like tingles which feel like mini releases…I have had full spontaneous “petite morts”, but most feel like pressure, release and a desire for it to stop.

I wish there were names for the sensations and better understandings. I’ve googled and read peer reviewed articles of what we have. I just really have never talked about it with other sufferers before.

when I’ve talked about it with partners or friends there is this expression of awe or envy. Sometimes I appreciate what my body can do and that I can feel intense pleasure, but I’m having a MAJOR flair up due to Vyvanse right now and it’s not been this intense for years!

The treatments I’ve tried ( on the low because the few doctors I’ve told said they have never heard of it…I also in a medical profession) (Not giving advice, just wanting to discuss what I have SSRIs take away the ability to orgasm…but don’t stop the pressure tingles, ketamine makes things duller, but doesn’t relieve the pressure…klonapin helps, but I have panic disorder, so I have to be selective of what condition I’m treating since doctors are like PGAD?! Wat Dat?

Thanks for reading!

I posted about a month ago my struggle and how I got stuck in a two-week loop of masturbating almost or every day. After I posted, I managed to break free. I was so relieved and thankful. Unfortunately, I got into another loop after being free for about 3 weeks.

I've been in this loop for a week now. It's just an awful and miserable situation to be in, but I've managed to make some changes in my approach and the way I think about my situation. I try to be more patient and tell myself that each day I'm getting closer to getting out of the loop again. I've also tried to eat and shower when I'm supposed to. It's difficult because each day you become more depleted, your mood shifts and are basically trying to keep up. Having multiple orgasms each day is no joke.

In my last post I discussed how I wasn't sure if it was somatic or just anxiety. I've come to the conclusion that it's both. Months ago I was struggling all day with constant arousal that arised with no desire or thoughts. It made me severely anxious. And now, I haven't been experiencing it as much, however everytime I do get a random wave of arousal now, I get extremely terrified and panicked. I start sweating then all my limbs start falling asleep.

I think I'm terrified of going back to the time of when I couldn't stop the arousal. And now everytime it happens for even just a quick moment I start to catastrophize it. I don't know what to do. This anxiety is debilitating and it eats up at me all day with the 'what if''s. "What if I can't stop it?" "I don't want to masturbate, it won't go away."

Masturbation had never really affected me until 2022 when this condition first started, now it scares me. It's incredibly boring, and if anything it makes me feel worse. One random sexual intrusive thought triggered all of this, I can't relax. I'm trying to get myself to understand that arousal is a normal body response. That I have control over my body and don't have to masturbate if I don't want to. But it's so hard. I'm fighting panic attacks and tears all day just trying not to think about it. It all hurts even more because I don't want to talk to anyone about it excessively.

I feel so humiliated. I have to fight off the urge to masturbate and sometimes the arousal is so strong I just give in. It’s not like I want to do it. I’d be happy if I never orgasmed again.

After masturbating I feel so much embarrassment, shame, and temporary relief. My anxiety is so high because I worry and stress over the next time Im gonna feel so strongly compelled to orgasm again. I really don’t want to anymore. I need this arousal gone from me forever.

I am struggling to go more than 3 days without orgasming. The longest since I had discovered I had PGAD was only 9 days. I don’t look forward to the next time I have to relieve the arousal. I’m just completely and utterly humiliated.

I want to tell my mom but I can’t bring myself to. It’s so awkward.

Just recently I had a very bad case of COVID and orgasmed while having a fever. I just wanted to cry. Now I even lie down with an ice pack in my underwear.

Hi, I know most people on here are in despair and not seeing knowledgeable doctors who will listen but it seems some people get tests

after 18 months waiting at home isolated, gynaecology has been very bad, they aren't educated and are either brash or don't listen. I want to see a neurologist and just got a note saying neurology don't think they're best suited to help me and think I should be referred me to the pain clinic?? when my main symptom isn't the pain?? (the first months was purely pain but then the pgad)

we don't nearly fit into any department so they won't bother? won't even try? not even an MRI or nerve block test to see which nerve is damaged (I think I know but they don't care)

I saw someone on here is maybe getting a sacral modulator or something in London as a test but how to I get a referral to a decent neurologist?? like I don't understand how it works? surely if one team says no then another team could say yes?? do I have to just put up with whoever is local

when my parent was ill new american drugs helped their life extend by years and the nhs refused to pay for them. people drag american healthcare but I'd prefer debt and to be alive? or do they take desperate people's money and leave them suicidal still anyway?

has anybody got any help on the nhs and if not, is anybody well enough to write to MPs or have anyone in their life who is healthy enough because this is disgraceful. especially when so many get it from 'safe' srris that doctors give with incomplete side effect warnings in the box.

also no PIP. apparently I'm soo healthy and don't need assistance to leave the house now and taxis over walking and buses?? like our benefits system is probably better than the States but it's still horrific and they say you are lying

I don't know what to do. Do any countries actually help us? surely I should be allowed to try and see a neuro before I give up? why did I wait in suffering then. has anyone in the UK got any help?

I struggle with this since about a month and a half, I've had this constant arousal come and go twice already and now it's back again. I mean I'm happy that there are still times when I don't feel it and it's good but why does it have to come back? Did anyone's PGAD start like this?

Sorry for this pointless post but I'm just exhausted and I like to vent.

Hi everyone, m 28 here, I'll try to make it brief and accurate. I've been dealing with pelvic floor problems since the age of 11, the only symptom at that time was constant urge to urinate. I went to different doctors who told me everything is perfect, so I had no idea it was pelvic floor muscles related. But thank god it was manageable cuz it disappeared most of the times throughout the day, at the age of 24, I started having other symptoms, but still manageable...

Last April, I tried to change the masturbation method, it was like a shock to my nervous system cuz it was used to another method, right away, I felt my heart beating fast, my pelvic floor muscles got too tight and the Pgad sensation started. A constant arousal feeling mixed with burning sensation. That was the worst feeling I've ever had in my entire life, it literally didn't let me do anything. It kept my nervous system very sensible and overreacting. many things could make it worse, thinking about it, sitting, sleeping on my side, moving fast and doing efforts, stress, caffeine was the worst one cuz it triggers fight or flight in my nervous system. I never had panick attacks till that time, my heart beating so fast for no reason, couldn't sleep, brain fog, I literally felt like I'm losing my mind.

It was there for 1 month and a half, during that time I really didn't know what to do, I was looking for answers here and there, I used AI to help me, there's no pgad or pelvic floor specialist here. The only thing I was thinking of is death, cuz that would be my escape from madness and suffering.

During the hard times, there's was a wise and courage man inside me, I decided not to get any mental help ( although I was literally feeling like I'm losing my mind ) and not visiting any doctor. The decision was to trust my body and try to calm down my nervous system by sending safe signals. I came back to do everything I used to do, it was there, yes, but I didn't care. I went out, played football, go to cafe, work l, masturbation ( I cut it off for a month thinking it would make things worse)...etc

Afree some days, I felt the pgad intensity started going down, and I kept it up, living my life normally without caring about it, days passed and my nervous system calming down and letting things go.... Now for 2 months and a half, I'm PGAD free. There are still some pelvic floor problems, but they are still manageable. I know it's still early to post this, but I just wanted to share with you that it can go away and I'm living my life normally without having to think about that nightmare.

I just wanted to share this, it may help some of you. What you feel is real but doesn't mean it would never go.

Wishing you all a healthy life ❤️.

Hello, I am 37 years old and experiencing some perimenopause symptoms. I used to experience very strong, intense throbbing and sexual arousal. Suddenly, along with a decrease in my menstrual flow, both my sexual arousal and the intensity of the throbbing decreased significantly. I experience a lot of numbness, especially in the morning hours. Could estrogen be the cause of this? Has anyone among you had their hormones checked?

I was prescribed this for management of a yeast infection. I applied it everywhere externally and now my clit has major sensitivity. I stopped using it when I noticed but it feels like it affected the nerves in my clit making it hypersensitive. Has anyone had issues with this and what have you used to help? Please help I’ve been struggling with this feeling for two weeks.

I’ve had PGAD my whole life, basically. For the past two-three days I’d become really depressed after accidentally triggering a flare up, and came closer to trying to relieve the sensation myself than ever, and I’m suffering. I thought I had already ruined myself for the next few weeks so feeding into it didn’t hurt anything, it would just make me suffer for a few more days than I was already going to. I was never really educated that well on what the medical terms for this subject might be, so excuse me if I’m not being specific here. Normally the arousal goes back to its normal levels of bothersome in a few weeks, whenever I purposefully try and amp up the arousal, but this time I went farther than ever. I didn’t explicitly touch myself or anything, but I don’t know what the fuck I did 🥲 I think I came close to an orgasm, but I didn’t let that actually happen due to fear. Google isn’t giving me any good results for anything. I’m relatively new to actually knowing how pgad works. should the flare up subside in a few weeks, like last time this happened? I’m just extra worried this time because I don’t want to be in this state for more than two weeks max. My genitals are already throbbing in pain/sensation and I can do nothing, really because if anything touches that area it will make it 100% worse. Even ice packs. it feels worse than last time, for sure. I just hope I didn’t mess myself up for longer. Is there literally any fucking thing I can do?? I want it to stop.

This is a short post so i hope that’s ok, i mean i read the rules and couldn’t see a no low effort. I did see the “no causes” but im definitely not trying to say anything like that. I am struggling to find posts on it but im trying to see something. I came across the condition PSSD, which is post-ssri sexual dysfunction and it turns out (according to google) PGAD can start after too. So i was wondering if anyone might have a light bulb moment too?

Alguien de por aquí se he hecho un análisis de sangre completo para saber si el problema está causado por alteraciones hormonales, o incluso por un exceso de actividad de la tiroides?

I’ve been dealing with this for a little over three months now. I had no symptoms at all before this event. It started after a period of very frequent/intense vibrator use, and during the first month my main symptom was the persistent unwanted arousal sensation. Thankfully, that gradually decreased in intensity and became more and more sporadic, and at this point I essentially don’t experience it anymore.

I also had different kinds of pain, urinary symptoms, pelvic muscle tension and general discomfort. I was told I had irritated pudendal nerve and hypertonic pelvic floor. The type and location of the pain have changed a lot over time, but overall all of these symptoms have gradually improved as well. At the moment I still have some mild pain, muscle tension, sensitivity and a general feeling of the area being irritated/swollen, but physically I am doing considerably better than I was at the beginning.

What I’m struggling with the most now is actually the mental and emotional aftermath of all of this.

The first few weeks put me into an extremely intense state of anxiety and fear. Because the whole problem involved that area and started after sexual stimulation, I also developed a lot of fear surrounding anything sexual. During that period I started experiencing very distressing intrusive thoughts as well.

Things became more manageable during the following couple of months. I still didn’t completely feel like myself because I was dealing with physical symptoms every day, but mentally I was coping much better. However, over the past week and a half, my anxiety and intrusive thoughts have become much worse again, and I’ve also been feeling increasingly depressed.

The strange and frustrating part is that this is happening while my physical symptoms are actually improving. Sometimes I feel as though this whole experience has somehow broken my brain, and I’m terrified that I’ll never feel like myself again. I miss simply feeling calm, emotionally stable and able to live my life without constantly being afraid or analyzing what is happening in my mind and body and especially without intrusive or obsessive and unwanted thoughts.

So I wanted to ask whether anyone here has gone through something similar emotionally and eventually recovered from that part too. Did you reach a point where you felt like yourself again? Did the anxiety, fear and intrusive thoughts eventually settle down as your body recovered and you had more distance from the experience? I really need some hope that it is possible to come out the other side of this and have life feel normal and livable again.

I’ve only been doing pelvic floor physiotherapy for the physical symptoms, and I’m now starting psychotherapy as well. I haven’t taken any medication so far, just vitamins/supplements. I started taking ashwagandha after the first month and stopped two weeks ago, maybe that had something to do with my increase in mental symptoms, I don’t know. I’ve started taking ashwagandha again today. I would also be interested to hear whether anyone found medication, therapy, or anything else particularly helpful for the emotional aftermath.

Thank you to anyone willing to share their experience or some hope with me.

I had this disease as much as I knew myself. I think it started around when I was seven years old.
Sometimes in the mornings, I wake up with extreme arousal and spend an hour trying to orgasm.
I reached tiny orgasms, but it doesn't feel like actual release and it keeps going.
What really helped me is taking magnesium. I realized, since I'm taking magnesium it's happening less and I am also on fluoxatine and vyanae.
But I also cannot orgasm through normal masturbation or sexual penetration, even though I feel a lot of pleasure I just cannot finish.
I started trying with a vibrator to orgasm normal way, but then I quickly got into doing the same thing when I have the flares.
Does anyone know how can I have a normal orgasm with this?

It's time for me to rant my thoughts out, my period started today, I'm in pain and sweating like a pig, so I'm even more grumpy today.

Anyways, I've noticed that over several months of having this condition I lost my creative ability. I can't sit down and draw anymore because it makes the arousal act up. I can't sit down and make covers of songs I like at my computer. I have no patience for drawing like I used to, it's rare for me to come across good days where the arousal doesn't affect me and I have high energy. I miss singing. I miss drawing. Recently I've started getting pain in my hands when I use them, so I can't use my hands as much anymore.

Everything I do requires energy, I haven't left the house in ages. I know I should've tried to go on a walk, but I know it won't be enjoyable because of the hot ass weather. Then the heat triggers my Vasovagal Syncope and makes my heart skyrocket to 200.

If I did go on a walk I'd want to go with someone, but I have no friends and my family is always tired. I seemingly have no time and energy to even go on walks. My days are forever long and dreary, every task I do is a pain. Showering has become dreadful, I don't know why it sometimes makes the arousal worse. I depend on my phone to keep me distracted but sometimes that isn't enough. PGAD and GAD aren't a good mix. I feel more dead than alive.

There isn't much food in the house either, well there is, but I too have no energy to get up and eat so my sugar keeps dropping to 60 until I force myself to drink a soda or something.

I'm not doing well, the arousal and anxiety and all my efforts to keep my sanity/emotions at bay is energy consuming.

I finally found a psychiatric nurse willing to treat me. The plan is to very, very slowly wean off duloxetine. It will take 9 months. I'm adding low-dose Naltrexone for my chronic pain to replace Duloxetine. To address my mood swings we may try a mood stabilizer eventually. I started with 1mg Naltrexone and have dropped down to .25. My body requires micro doses of meds as I'm extremely sensitive. The duloxetine did not cause PGAD for me, but I later realized when the dose was temporarily increased and symptoms increased, that it sensitized my nervous system to make it possible. I am mostly in remission so this is a safe time to try to wean off of it. Naltrexone has the opposite effect: it is calming to the nervous system.

It's been several months living everyday constantly aroused, I have my days and weeks where it doesn't bother me then I have my times where it's literal hell. However, over that course of time I've been thinking to myself about it and feel discouraged that it may not be PGAD and rather just my mind playing tricks on me.

PGAD is classified when it doesn't go away after self-pleasure, I think. But the thing is, I'm too scared to. I haven't done it in months out of fear. Every time I do it makes me feel worse so I stayed away from it all the time even prior to having this disease. But a nagging part of my brain wants to know if it would disappear this time around after trying, even though I know it won't.

It's all really useless rambling. How can I be sure that it's not just my mind playing tricks and it's an actual problem?

Hello everyone, 35M here. I have a lot to explain but will do my best to keep it short.

I was in a 15 year commited relationship that became extremely abusive to me, during that time I had seemingly lost all interest in sex. Things escalated and got pretty dangerous. I filed for divorce and after a year long battle got away from her and have custody of our child.

After a few months of separation though my drive came back in full force, like to a degree I've never even had since puberty. I've constantly got this pulling,pressure light throbbing feeling down there and even in my prostate.

I was also recently diagnosed with multiple sclerosis, I've been struggling with symptoms for almost a decade and finally got answers. Unfortunately one of my more recent symptoms is numbness down there. It takes an extreme amount of effort to achieve climax and when I do it's not that great. The only time it's ever been "satisfied" is after actual intercourse which still ends up being a long winded multi session endeavor to finally get there.

By the time it's all said and done I'm beyond exhausted and inflamed and feel horrible, masterbation only seems to make the sensations more extreme. Not feeling the pressure drop down there until after multiple climaxes.

The combination of my returning labido and PGAD + the numbed sensations is actually driving me fucking insane. I feel worse than I did going through puberty and I just want to have sex so bad to make it stop. Dating is basically off the table for me right now and partners to assist me aren't free, reliable, consistent or loyal so I don't exactly feel comfortable with that.

After having given my entire adult life to someone, I don't want to make the same mistakes I did before. I don't want to think with my willy but my willy is making it mission fucking impossible. I don't know what to do, or how to do it.