r/Prostatitis 3d ago

Why has it come back?

I have had CPPS for getting on two years now. For about 14 months the pain was unrelenting, and then it went away (I was so so happy), only to appear again a month or so later..I have no idea why it went away but I guessed one of the reasons it came back was because I was under a lot of stress.

About a month or so ago the pain went away again. I attributed this to the use of Tadalafil as it went away almost as soon as I used it. A month in, I was starting to allow myself to believe it had gone and then yesterday, out of the blue, the pain started up again. I have absolutely no idea why. I am going through a very good patch mentally and physically. Haven't felt so relaxed in years (partly, admittedly because I was pain free) and this again. Why oh why?

I can't think of anything that could have triggered this. My life style hasn't changed and, as I say, mentally and physically things have been good. I just can't fathom it. It's like the condition is torturing me.

I have started taking the Tadalafil again but, so far, it's not had the impact it had before, though this is only the second day of it. The only differences in my life I can think of are that I started eating cheese for the first time in months (though I still consumed dairy products- kefir and yoghurt) and I wore some trousers that were a little tight. Could these things really be enough to bring this condition on again?

Is it the case there sometimes is no apparent rhyme nor reason why it comes on? I would have thought there must be a cause of some sort, be that physical, mental or both.

Very interested in what others have to say. Has the condition hit you out of the blue like this? Any advice would be very welcome.

Man, this condition is hard. :-(

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2 Upvotes

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u/Linari5 LEAD MOD//RECOVERED 3d ago edited 3d ago

Yeah it is very hard sometimes, I've been there myself.

Neuroplastic pain often behaves this way - https://www.reddit.com/r/Prostatitis/s/siRvkBckaf - read through this post and go through the criteria near the bottom, and then let me know how many you match.

Neuroplastic pain affects between 50 and 90% of all of our cases.

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u/Top-Space-3707 3d ago

Thanks! I will go through the criteria.

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u/Top-Space-3707 3d ago

Criteria 1, 2, 3, 5, 10, 11, 12 for sure. Sometimes 8 is true, too.

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u/Linari5 LEAD MOD//RECOVERED 1d ago

Then you have ruled in this type of pain - you are a candidate for mind body modalities like EAET and PRT especially if you have gone to doctors and ruled out severe structural things (which by the way, is their primary role)

HOW TO TREAT centralized (neuroplastic) pain and symptoms?

PRT - Pain Reprocessing Therapy:

Effect of Pain Reprocessing Therapy vs Placebo and Usual Care for Patients With Chronic Back Pain - https://jamanetwork.com/journals/jamapsychiatry/fullarticle/2784694

EAET - Emotional Awareness and Expression Therapy

Psychological Therapy for Centralized Pain - An Integrative Assessment and Treatment Model: https://pubmed.ncbi.nlm.nih.gov/30461545/

Emotional Awareness and Expression Therapy vs Cognitive Behavioral Therapy for Chronic Pain in Older Veterans https://pmc.ncbi.nlm.nih.gov/articles/PMC11177167/

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u/pelvicagony 3d ago

Pain where?

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u/Top-Space-3707 3d ago

In the testicles and scrotum at the moment, though it can move.

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u/pelvicagony 2d ago

If they aren't severe enough to require opioids, there is a way to heal: don't let it get to you, move forward, do what you enjoy, and just tough it out—they’ll go away just as they came! There is only one aspect of UCPPS that is hard to manage: the urgency and the issues with muscle dyssynergia. But you—you can heal!

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u/Top-Space-3707 2d ago

Thanks for the encouragement. :-)

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u/thoughtlesswarmth 3d ago

Man, that sudden return after a good stretch is a special kind of gut punch. The cheese and tight trousers thing might sound minor but for some folks those are absolutely triggers, dairy can be inflammatory for certain people even if yogurt and kefir don't hit the same way. The randomness is the part that eats at you the most, you do everything "right" and it still shows up like an uninvited guest. I've had flares that I couldn't trace to anything at all, it's maddening but you're not alone in that.

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u/Unholyghost1 3d ago

Same just when I think I'm getting better and relief I flare up again and back to square one