For context I'm disabled from birth. Transformed into an invisible disability.

I have been literally verbally assaulted by freshly diagnosed people who never lived disabled (never had symptoms as kids etc, could go unseen and unbothered) who tried to teach me about how to handle my disability, tried to teach me what was I doing wrong about MY disability, that I was ableist while literally trying to teach me instead of considering my own experience (which literally is around 25 years longer than theirs) is the ableist move. I'm sorry but I can't take it. I use mobility aids, I can barely function. And these people act like I'm new to this. Met around 4 of these people.

What the title says. I'm at a really low point but honestly it feels like my body and brain are just done with living like I'm not disabled. I wasn't doing better before, I could just pretend. I can't pretend anymore. I know what's wrong with me now so I feel the chronic pain a lot more. I just can't function. Can't even sit. And all I want to do is work. I just want to work guys. I'm not even asking to be rich. I just don't wanna fall in the trap of living solely on benefits. But genuinely it feels like that's my only option because I can't sit for 20 minutes without being in excruciating pain. I don't wanna share my diagnoses because it's too real. But honestly I have tried everything and I just feel like I'm going insane. No space is safe. Nothing is safe except bed. Not even bed, I am in pain there too. Living with family is really bad for mental health. But where can I go if I have no money? I hate this I feel like I'm going insane. I can't participate in society in any way.

I recently passed 1,000 subscribers and I'm planning to upload weekly, at least until the end of this year. I make semi-amateur videos about everything related to wheelchair travel, including hotels, attractions, general travel tips, and sometimes parkrun courses. I know there are already a few channels out there, but I wanted to see if anyone here hasn't discovered my channel yet and would like to subscribe!

URL https://youtube.com/@wheelchairtravelworld?si=UM6S6o1twhn3XVEf

Basically as the title says, am I wrong for wanting to have a disability?

A little context, I struggle with walking a lot from time to time. My feet, knees and hips hurt so much it's hard to bear and sometimes I can't walk because of the pain (my wrists and back hurt to but that's oftentimes way more bearable)

I have talked to a doctor (obviously) and he said I have hypermobile joints and that it can have a lot of different causes including puberty, and I would have to wait until I'm 24-25 Years old until I can either get a diagnosis if the symptoms don't disappear until then.

Now don't get me wrong, if I could pick I would choose to be without pain (again, obviously) but it's there and I kind of wish I could get a diagnosis for something, anything so I can get help.

I have entire weeks were I read up on different mobility aids (mostly platform crutches and wheelchairs) and wish I could have them.

I feel extremely guilty for wanting them because I know I don't need them but I always imagine them taking away the pain (I know that's not how they work.)

But even if I would have them, I'm not allowed to use them. I own a pair of standard forearm crunches (from my mom, who used to need them) and the orthopedist said I shouldn't walk with them or use them.

TL;DR I have pain in most of my joints and I want a diagnosis, but I won't get it for about 6 more years, is it wrong to want a diagnosis for a disability to get help with this problem?

BTW. I'm not asking for medical advice here but on a moral level because I feel like I'm an a-hole for wanting to have a disability, because disabilitys are, well… disabilng and oftentimes connected to a bunch of problems and doctors and all of that fun. (I know that from close family/friends)

Honestly how does everyone get about jobs at the moment, i have crohns with an ileostomy, sarcoidosis and crohnic pain, im also on medical cannabis, i put myself out there for jobs but can only limit myself to part time office work.

It seems like there is a massive lack of job opportunities and career progression anyone.

I’m disabled and have clear delivery notes on my account asking for orders to be brought to my door on the 3rd floor. Lately, with Walmart's new updates, it feels like drivers just don't care. They dropped my entire order right by the gate and ran off without reaching out, completely ignoring accessibility needs just because of a tip.

​Walmart even tells customers we don’t have to tip if we pay for the subscription, but drivers take it out on us by refusing to do their jobs properly. I couldn't carry a 40-pack of water up three flights of stairs myself, and when I tried to ask people nearby for help, no one wanted to. It’s so frustrating that delivery drivers treat accessibility instructions like optional suggestions.

Hallo Ihr lieben, ich weiß nicht mehr weiter deswegen versuche ich es hier.

Mir fehlen so langsam die Kräfte. Und ich schäme mich zutiefst das hier überhaupt machen zu müssen 🥺

Aber wir sind ganz dringend auf ein Barrierefreies Badezimmer angewiesen.

Ich würde mich freuen wenn der eine oder andere sich unsere Geschichte auf GoFundMe anschauen würde.

Vielleicht könnt ihr mich unterstützen und den link teilen?

Jeder kleine Beitrag würde uns unfassbar helfen.

Ich danke euch alle schon einmal von ganzem Herzen

Bei Fragen bitte fragen

https://gofund.me/0166e6794

Okay so, I've been kinda struggling with my stability. Anytime I stand or walk I need to lean against something to make sure i don't end up stumbling or even falling (there are cases where i have fallen). Anything requiring me on my feet takes A LOT of energy which I already lack and im not really sure whats been happening. I want to get a diagnoses or a reason why this been but since i know that's going to take a while, i want to get a cane or some form of walking aid to help. However, i dont want to come off as disrespectful or rude in any way so i just want to come on here to get other peoples opinion before I do, just to make sure im not doing something wrong. I am willing to answer any questions if anyone has, i just wanted to make sure its okay for me to have one or not.

Hello!

My name is Jacob. Last year, my sister Aubrey was diagnosed with Multiple Sclerosis at the age of 26. Her and I are big fans of Love on the Spectrum and we thought “why doesn’t this exist for chronic illnesses?” So we made it exist!

We just completed our film festival circuit where we picked up several awards and today we’ve released the doc to the public. It’s 22 minutes and our ultimate goal is to make more episodes that feature other chronic illnesses.

Please enjoy, please feel free to offer feedback, especially if you are part of a community represented on screen, and please share with someone you feel should watch it.

XOXO

https://www.youtube.com/watch?v=EBdXc0y09eU&t=1s

Hello, this might seem like a silly question but I've had people straight up tell me that I'm not disabled, despite what I have being legally and medically classified as a disability. I have fairly severe epilepsy (around one seizure every three months with medication) and fairly high functioning autism. My seizures aren't "bad," since I have focal seizures, and they aren't really noticeable; but they still impact me and make my life much harder. I understand why people wouldn't classify either of these as disabilities, since they don't actually impact my life all that much, at least in comparison to other disabilities, which is why I was wondering if I actually count as being disabled? Like I said, epilepsy and autism still impact my life severely, and I have many needs that others don't but if I even allude to the fact that these are disabilities people often look at me strange, or even tell me that I'm not disabled for having them. Oftentimes when people minimize the impact that they have on my life and they insinuate that it's my fault for having special needs that others don't; that I could be "normal" if I just tried hard enough. This is epically frustrating coming from people who are disabled, it often feels like, since my disabilities aren't as obvious or as impactful as theirs they don't count and my suffering is invalid. I know that this probably isn't true, but at the same time when you have basically everyone in your life telling you something, it starts to become true... at least in your head.

I’m disabled and have clear delivery notes on my account asking for orders to be brought to my door on the 3rd floor. Lately, with Walmart's new updates, it feels like drivers just don't care. They dropped my entire order right by the gate and ran off without reaching out, completely ignoring accessibility needs just because of a tip.

​Walmart even tells customers we don’t have to tip if we pay for the subscription, but drivers take it out on us by refusing to do their jobs properly. I couldn't carry a 40-pack of water up three flights of stairs myself, and when I tried to ask people nearby for help, no one wanted to. It’s so frustrating that delivery drivers treat accessibility instructions like optional suggestions.