r/shingles 2d ago

Postherpetic Neuralgia (phn) How long did your post-shingles nerve hypersensitivity last?

I had disseminated shingles (extensive in multiple dermatones and crossed midline slightly) a few months ago. I am young and immunocompetent. I was a bit late getting treatment as they thought it must be something else until swab confirmed.

The lesions have been healed for 2 months now but the skin is still hyper-sensitive all the way down the affected leg and lower back. Sometimes it is very difficult to even pull trousers up, other times it’s only a mild tingle. It varies greatly by day.

How long did you experience the pain/hypersensitivity? What worked for you?

6 Upvotes

17 comments sorted by

10

u/ellasav 2d ago

14 years and still sensitive 100% of time, occasional shooting and about 2x/day very sharp like labor pains. I was on an antiviral within 24 hours of blister outbreak.

2

u/Beginning-Intern-855 2d ago

This made me feel less like a screw up for not catching my shingles out break earlier. I am two year out and am irritated 100 percent of the time unless I am exercising.
Today it feels like someone is pulling my hair. The outbreak was on my back . Good time

1

u/_bananas 1d ago

Same same but different. <3

5

u/kritzkratzmuc 2d ago

About a year 😭

5

u/high5scubad1ve 2d ago

1 year daily. A second year chronically. A third year sporadically.

5

u/LostInSpaceA 2d ago

My skin is numb but there are a couple spots that intermittently itch like mad. Been a month since diagnosed. 

3

u/TooBrief4You 2d ago

Im a couple months post recovery. Nerve pain is mild and hit or miss throughout the day. I had it on my neck wrapped around over my left shoulder and patches on that side of my chest. That shoulder joint still aches, sometimes pretty bad, throughout the day. Hoping that subsides cause thats the worst of what remains.

2

u/baabukiamma 2d ago

April. September incoming and it's still there

1

u/combabulated 2d ago

The big lidocaine patches can stay on forever and protect your skin from clothing or anything else rubbing or touching the sensitive area. .

2

u/Lucky-Solution-5868 1d ago

Are you referring to OTC patches? The prescription 5% patches are 12 hours on 12 hours off

1

u/combabulated 1d ago

I only used the otc, really for sensitivity. Not that effective for pain for me.

1

u/Lucky-Solution-5868 1d ago

Gotcha, the prescription Lidocaine helps a bit for pain

1

u/Milwerica 2d ago

I am several months out of disseminated shingles x 2 and still an issue. I feel your frustration.

1

u/Safetoresearch25 2d ago

One year and a month past having shingles. Still have nerve pain and numbness in the spot where it was. Sometimes but not often, it’s unbearable. I still use lidocaine patches and cream.

1

u/LashEggEddie 2d ago

I had shingles last October, and sometimes I still have tingling in my lesion spots. Had it on my scalp. Oh, and there’s occasionally numbness on the back of my ear still.

1

u/ryanrodgerz 2d ago

It was about a year for me

1

u/Queasy_Barnacle_4523 1d ago

20 months so far. I will say periodically i will think it's getting better.