I’m writing this because I honestly don’t know what to think anymore, and I’m hoping someone here may have experienced something similar.
At the end of May, my father suddenly told me that he was extremely cold. He immediately went to bed, and shortly afterwards he started shaking violently. I had never seen anything like it before. He suddenly became so weak that he couldn’t even get out of bed. His oxygen saturation also started dropping, so I called an ambulance.
He was taken to the hospital very quickly. He was able to contact me from the hospital because I had given him his phone. They started doing tests, but at some point he stopped breathing. They discovered that he had a pulmonary embolism. He was immediately transferred to the ICU and put into a medically induced coma. He stayed there for about 10 days, but thankfully he recovered enough to come out of it.
During all of this, further tests revealed something else: kidney cancer with metastases to the lungs.
After about 2.5 weeks in the hospital, he was discharged and came home. He was recovering surprisingly well. However, about two weeks later, the exact same thing happened again — severe shaking, feeling extremely cold and a drop in oxygen saturation. He was taken back to the hospital, and this time they diagnosed urosepsis. Fortunately, he recovered relatively quickly and was back home after around 10 days.
At the same time, he had an appointment scheduled with an oncologist about a month and a half later. While waiting, he was recovering at home and actually started getting much better. He was walking again and was able to do quite a lot of things by himself.
The main thing bothering him was terrible back pain. He also started eating less because, according to him, everything had started tasting bitter.
Eventually, we had the first oncology appointment and he was given another appointment for a biopsy. We were hoping that this would finally allow treatment to start.
But about a week ago, just three days before the scheduled biopsy, he had another episode. His oxygen saturation dropped again and he started shaking violently. This time he was taken to a different hospital.
They diagnosed another pulmonary embolism, as well as Klebsiella pneumoniae pneumonia.
While he was at home, he had also been having recurrent urinary tract infections, although about three weeks ago his tests showed that there was no longer an infection, so it seemed like things were improving significantly.
He is now in the ICU again, but thankfully he is not in a coma this time and is responding well to treatment.
We are still trying to arrange for them to perform the biopsy while he is in this hospital, because otherwise we keep getting stuck in this horrible cycle. The doctors say that the tumor in his kidney is likely contributing to the recurring embolisms, but without the biopsy it is difficult to move forward with oncology treatment.
And now something happened again today that really scared me.
This morning I spoke to him on the phone and he sounded good. But during visiting hours, the same thing happened again. He suddenly started shaking violently, complained that he was very cold, and his oxygen saturation started dropping again.
The doctor told us that the shaking is caused by the infection.
Has anyone here experienced something similar?
I’m particularly wondering about this very strange pattern: oxygen saturation starts dropping, the person becomes somewhat less responsive, then feels extremely cold, falls asleep or lies down, and suddenly starts shaking violently.
I understand that infections can cause chills and rigors, but seeing these episodes repeatedly is terrifying, especially because the first time it happened he ended up in respiratory arrest and was diagnosed with a pulmonary embolism.
I’m really afraid that he will eventually be discharged again, we will take him home, and the exact same thing will happen all over again.
At the same time, he urgently needs to start cancer treatment, but we seem to be stuck in a vicious circle — infections, embolisms, hospitalizations, waiting for a biopsy, and then another episode before we can even get to the next step.
Has anyone with kidney cancer/metastatic cancer, pulmonary embolisms or severe infections experienced episodes of violent shaking/rigors together with a drop in oxygen saturation like this? What was the cause in your case?