Alguien sabe algo de terry? Desapareció de todos lados

Are there any people who had really severe NOX symptoms and are doing better now, please? People who had pain when silent and couldn't speak?

After my latest trauma ( A fire alarm at work and a very loud dropped pallet right next to me ) I'm on the verge of quitting as I'm scared of making this any worse.

The impact caused intense, burning 'hot ear' inflammation initially. It has now transitioned into a state of severe nerve hypersensitivity. I am experiencing unprovoked spells of deep throbbing, itching, and a persistent, dull ache inside the ear canal that lasts for blocks of time.

Do you think a few weeks off will be of use instead of quitting ?

Idk why but everytime someone is direct and loud it triggers me. Doesn't matter if it's positive, neutral, or negative. I mask good enough to get through it (I mean not even my parents noticed I did this till I was an adult) but I end up shaking from stress. Sometimes my eyesight gets blurry and I have difficulty realizing what the person is saying. And then it lasts a few minutes, hours, or days. Then I get nauseous and isolate. Then when I get away I feel better. Even myself I speak softly no matter the volume because speaking with a direct tone will still trigger me! 😭 Does anyone experience something like this?

I have reactive tinnitus and Hypercusis, just confused if I should get married and raise children or stay single forever.How you guys are managing your family life and kids with Hypercusis and tinnitus

I’ve been mulling over asking my PCP for a gabapentin prescription, but only to be used for when I just need to ignore the pain for a bit if I’m out and about. My normal pain doesn’t really get severe anymore, but I’m not trying to risk getting severe pain by overdoing it with a day out.

I have severe Nox pain when speaking. I’d had much less burning over the last few days and was seeing some slight improvement, but then I had a personal issue and lost track of time; I ended up spending an hour on a call using the speakerphone—albeit at a very low volume and with earplugs in. For the past three days, the burning has come back with a vengeance, and I feel like the hypersensitivity has skyrocketed. I don't know if it's because of the phone call or not, but I'm terrified that I've made things worse. Do you think it will pass?

i am looking for something either decibel meter or any other device which can monitor Human voice and alerts through light change in display when it exceeds 60 DB and this will be customizable as today my threshold is 60DB tomorrow might 50 or 70

anyone having idea please suggest

idea is when i seat in room where 3 - 6 people are seating it keeps them in chk as they will know at what decibel i am comforable and where my discomfort starts

Usually I just put one of the mufflers over my left ear, because it's much more sensitive, for things like the dogs that bark across the street, dishes, flushing the toilet, etc.

The bad thing is especially with the dogs across the street is I have no control how long that's gonna happen or how intermittently it's gonna happen, so blocking out all of the sound would be a nice rest, but that would make me even more sensitive. I don't like covering my ears for even a minute. So being able to cancel outside noise and still have some kind of noise in my ears would be great.

The problems I keep running into is that it's really difficult for me to tell how loud something is in my ears with headphones on and not knowing the amount of decibels freaks me out.

Is it really just trial and error? Or has someone figured this out on an iPhone 15 Pro or anything similar enough?

I understand that standardized loudness is impossible depending on what program you're using, but has anyone found a way for stuff to try that’s 25-30 dB and up?

I use an acoustic noise machine that's about 29-30 dB in the background and that's been fine for a while.

I can take 40 minute phone calls without mufflers if I remember to speak quietly enough.

Progress is really slow and in the back of my head I'm terrified of possible setbacks.

Would appreciate any useful advice or if you want to post out of support, love it.

Do they?

Asking about the thing above.

While I am on the spectrum, I've been reading up on different kinds of sound sensitivities and related conditions. So far, my symptoms have aligned with hypsracusis the most — the thing is, my memory's really bad, and I don't quite know when it started, so it's possible Its just autism. If it's possible, I will expand on what I experience in the comments — and adding onto the question, can neurodivergence cause or affect the condition? Apologies if the question is dumb, I don't mean to be disrespectful.

Who has nox and lives a life despite the pain?

I feel so horrible, I turned 21 in may but this started when i was like 18-19, I got accepted to uni but stopped going, I worked out for 2 years and built a good physique and was planning on doing coaching to make money. Now I'm fat, broke (even though I know how to make money, but can't execute it with this terrible hyperacusis and reactive tinnitus I have), every day feels the same, I've been given a sound therapy treatment as well as some supplements but I haven't been able to be consistent with it due to the recurring ear irritation I've had due to past excessive earplug use when I first got hyperacusis.

All of this is due to excessive earphone use when I was like 12-13 until around age 16, I thought everyone used earphones so they can't be harmful, my parents told me many times to stop using them but I didn't listen because I would search Google if they're safe and just not have the reading comprehension to understand what the result said, and my parents didn't make it past 9th grade and we're from an Arab country so they don't know any better.

My dad constantly reminds me of the past, and blames me for my mistake, part of what caused this is also my mom being forced to give birth to me, and my dad not knowing how to treat her, so she always hated me since I was a kid due to my dad fighting with her over my problems when I was 7-10 years old and in middle school. It was part of the reason i used earphones, she'd be shouting the whole day and I would have music playing in my ears just to not listen to her

What pushed me to make this post is that I just had an argument with my dad, we almost fought, he just said the same thing he always says, blamed me for not listening and misusing earphones, and wished I never came to life, and that his life became miserable ever since I was born, and said that it's not his or my moms fault but mine for not listening or being a good son, and that I'll never be as good of a son as my younger brother.

And now I'm sitting in my room with my ears ringing, absolutely nothing changed, he will just continue his life normally and forget about it, then after a couple or days or weeks he will remember the situation again and say the same things he said today.

I think I should really just get my shit together and move out of this place and forget I ever had a family or talk with them once every month or something, I really don't think there is another solution to my problems.

Sorry if this was long I just felt really bad after hearing what he said, maybe someone faced a similar situation and can give me advice. Thanks.

-Chronic 24/7 headache

-Hyperacusis (which causes head pain, not ear pain)

-Worsened tinnitus (it's become quite severe, gets louder when I talk or swallow anything)

-24/7 jaw ache

-Ears popping/thumping from sounds

These all started around the same time.. Can all of these symptoms really be "chronic migraine". Because that's what doctors say.

I take Pregabalin which the improved head pain from hyperacusis by 30% (I don't wear ear protection anymore) but none of the other symptoms. Feel like the ear popping and jaw ache get worse over time.

Are there people who recovered that are willing to chat with me either via IG or phone call or anything please?:( i have 0 support system,my family is not here for me,my depression is severe,i cry everyday for so many hours,im on a waiting list fot a therapist but in the meantime i cant hold myself together.this condition made me isolate myself and i also suffer with cptsd and other disabilities.i need to talk to posotive people that can just be empathetic for me:( i have no one to hold this pain with and im falling apart :( please :(

Hey, I'm wondering. For those who managed to improve their hyperacusis or even resolve it, how did you manage your tinnitus? Did it get better as well? Did each setback give you a worsening?

My hyperacusis is very unusual. I can shower no problem without ear pro, and I know I snore loudly, I never have a problem with that. But I can get a worsening from sounds way lower than that if I don't expect them. So it's pretty obviously a stress problem. Recovery is slow for me and kinda unpredictable, but my main problem is that my tinnitus always without fail spikes permanently from sounds that trigger my hyperacusis. I've tried to just live at home and hoping for my sound sensitivity to get better, which it usually did up to a certain level where my state was tolerable. Then it stopped getting better, or over time worse again for whatever reason (not pushing noise at all), and then I get the next setback out of nowhere. Tinnitus just keeps getting louder and louder and I'm getting fed up having to life in solitary confinement at home.

I'm at the point where I'm considering just taking clomipramine, because I'm starting to run out of options.

I finally tried a ssri (prozac/fluoxetine) after keep hearing about ssri able to help hypercusis. I watched a video on a guy who said it helped him improve his h. Well after my earplug broke and irritated my nerve I said f it let’s give it a go because I like to experiment. I researched the side effects and knew they was not to be played with but still at that time I didn’t care I just wanted the pain to go away.
I took a 20mg pill I was waiting for the effect to kick in like a Xanax or something but this was completely different.
The next couple days I thought it didn’t do anything for me but was I wrong. Instantly started noticing my body had changes. I’m not going to lie it did improve my pain and ldls but I had a new problem now. Apparently the medication I took can cause pssd/sexual dysfunction which I am now trying to fix and can be lifelong condition. My whole pelvis floor is in pain and my mind has went blank and everything is numb. I don’t feel any sensation including sexually and normally. It’s like it stole my identity and sex drive. I had a girl over and she literally left because she said I didnt like her anymore. Things I used to enjoy are uninteresting. I am not trying to make this an anti ssri post but sharing my experience with trying to improve my h. I still have hope that I will recover but for people trying ssri be careful because honestly now I have another problem 2 worry about. Now people may say it’s rare side effect but if u take a look at the pssd thread it’s people just like us who are suffering from conditions like h/t. I think if you’re going to take a ssri it should be your LAST option because the side effects can hurt u.

anyone else have fluid in their ear that won’t go away? I was sick a few times and I can’t rid it and ent won’t do grommets because he feels will cause issues with the hyperacusis and tts and mem. I’m a to steroid too. I’m in pain with weird issues of hearing because if the fluid and feel trapped in my bodyat this point …this is cruel..I’m tired of gaslighting because the fluid and the issues are in ct scans and blatantly visible what more do these drs need to see?

Im in a difficult period, my nox is very severe, and i might have to move to another place Wich is suppose to be a bit quieter than the one im at currently, but idk if its gonna be quiet enough to be able to stabilise, any advice, how can i help my body to calm the reactivity to sound, etc. Usually it work by it self, i dont take anything, but now if i stay with this sensibity idk how i ll make it