I have Fibromyalgia and i’ve had pain for the better part of 20 years. I’ve been shuffled around from Doctor to Doctor on every pain med you can think of until they criminalized pain meds and cut me off. I started going to a methadone clinic because i was tired of being cut off and going through withdrawals but the methadone clinic was a horrible place to say the least and without going into detail, I had to stop going there too so I had to go cold turkey… Again . I dabbled in illegal drugs and the Feds came after me to put it lightly. The only thing the doctors will put me on now is Subutex and gabapentin neither of which work. I started taking 7oh out of desperation and it works but it’s $40 a pop and the Feds are banning it. The Subutex doesn’t touch the withdrawal I get when i don’t take the 7oh. I’d like to add that when i’m medicated i exercise and that helps. But without medication the physical therapy/ cortisone shots and all the other bs doesn’t work. I know America is supposed to be this great place that everyone wants to move to. But it’s hell for those trying to obtain pain relief.

Hi everyone,

I'm considering trying 16:8 intermittent fasting (IF) to see if it might help lower inflammation and manage my symptoms, especially fibro pain and chronic fatigue.

For those of you who have tried it:

Did 16:8 IF make any noticeable difference in your overall pain levels or energy?

Did it help clear up fibro fog, or did the fasting window actually worsen your brain fog and fatigue?

Did skipping breakfast or restricting your eating window trigger any flare-ups initially?

I’d love to hear your personal experiences, any challenges you faced, or tips on how to start without crashing your energy.

Thanks in advance for sharing!

I’m a 32 YO female who has recently been diagnosed with fibromyalgia but has been suffering for years. I’m glad I finally know what it is (also diagnosed with early beginnings of psoriatic arthritis) because I have been suffering with much more frequent flares & worsened symptoms.

I work full time for NYC dept. of education, have an approx 2 hour commute to and from my job, and I work with students with diverse special needs. I can’t quit my job & no longer have sick days so if I take a health leave it will be unpaid. I desperately need help and was hoping cymbalta may be an answer.

If you’ve had success with it or other medications/treatments please share. I will try anything in order to keep my job. 😔

Also- if anyone recommends any over the counter meds/anything that helps them during a flare, please let me know.

Thank you!

I work a full time job from home but have progressively worsened over the past few months. My motivation is absolutely non existent.

I've actually become adverse to using my brain. Like any amount of thinking hurts. Anyone else experiencing this?

My husband asked me to stop talking about my pain or health or mental health and just talk about interests. It hurt. I used to never talk about anything and kept it all in, but he asked me a few years ago to start talking about it. But I guess it was more than he was bargaining for. The thing is, I don’t talk about my health and pain level everyday, and when I do I make vague statements like, “I’m in pain all day or can you rub my shoulder, it’s hurting a lot today.” I don’t talk about the fatigue or brain fog or how much I just needed to sit down for a moment because I’m in so much pain that every movement is hard. He doesn’t know how much pain I’m really in or how much of my day and mental energy is spent on managing everything I have to do for my kids and family while not falling apart or triggering a flare. I don’t even remember what it felt like to not be in constant pain. Anyhoo, my therapist recommended I post in a group because I have no one else to talk to, so here I am trying it. Thanks for reading.

Does anyone have any tips on what works good to alleviate pain? I’ve been using voltaren & lidocaine but sometimes I can’t even touch the site or even have a bed sheet touching my skin.

Hello! We are preparing to move to the Newport area in a month and I'm hoping someone here has a referral of a primary care doctor that is familiar with fibromyalgia. I'm willing to drive up to 1.5 hours because I know the coast has some limitations. I'm nervous because I've had doctors disregard my diagnosis that I pushed on getting for 20 years. I have other conditions such as diabetes, anxiety/depression and CPTSD. I'm needing someone to help me keep my current medications up and A1C checks as well.

not like... looking for a diagnosis or anything, just annoyed. I keep getting hit with random moments where even after taking a full breath, my body acts like I haven't inhaled in 12 years.

(imaging and such shows my lungs are fine for the most part, despite some obvious scarring on the lower left lobe. Eh, doc says it's fine.)

Anyone else experiencing this … impulsivity and an immediate need to do things when I have the energy.

I have a LOT of projects around the house that I’ve let go over the past year or so. 🫣 Lately I’ve gotten tired of them enough that I’m trying to tackle them. Problem is, I have several things started but not complete. Basically, if I see something that needs to be done, I’ll immediately start on it - but for obvious reasons, most of the time can’t finish it in one go. So, I’ve got lots of open projects … but at least it’s obvious what I’m working on. 😂

Am I the only one like this? It’s started recently with a few good energy bursts.

Hello! I (28F) am wondering what kind of over the counter med to take for the shooting leg pains? It's the kind of pain that feels like your bones are being hacked at by tiny goblins with fire pokers. I'm slowly going up on duloxetine but in the mean time I need some relief.

Advil? Tylenol? Naproxen? Muscle relaxer? Heat? Ice? Please let me know what has helped you.

I’ve had this pain before, but it generally feels like a band around my midriff. Now it feels like the membrane surrounding the lower front and lower back of my ribs are on fire. And it extends up into my mid-back. Is this just a symptom of fibromyalgia I haven’t realized?

I have a C5-C6 disc protrusion and had a cervical epidural steroid injection on Aug 12. Before the shot, I mainly had neck pain/stiffness with some intermittent arm tingling. Since the injection, my nervous system feels extremely reactive.
I’m now getting burning/tingling/vibrating through my neck, shoulders, upper back and arms, plus occasional jaw/face/lip/tongue sensations, throat tightness, shakiness, and pressure sensitivity. The worst part lately is deep neck pain when lying down.. Ican fall asleep, then wake 1–2 hours later in severe pain. Almost like pain waves in my body.
Repeat MRI reportedly showed no major structural change or cord signal abnormality. I’ve seen spine, PCP and pain management. I’m on pregabalin and amitriptyline and doing gentle PT, but even a light workday can trigger a big flare. I can no longer work
Has anyone had a prolonged nerve/sensitization flare after a cervical epidural like this? Did it eventually calm down, and how long did it take?

VERY long story short. I started Cymbalta/duloxetine at my absolute sickest with both fibro and MECFS. Around the same time I started Pain Reprocessing Therapy/ nervous system regulation/brain retraining and since then I've been steadily improving.

All my symptoms have been reducing and I've gone from being bedbound to being able to work from home, walk a mile, and go to concerts.

Tbh, I've never credited duloxetine with any of my recovery. I've believed it was all the nervous system work.

This is because progress has been really slow and I've continued to improve well after the time period when I'd expect to see duloxetine continue to make improvements. I've also seen improvements in all my various crazy symptoms across the board, not just pain.

The thing that's stressing me out just now is I've decided to taper off. I came from 90mg to 60mg just fine. I then went to 30mg and I've been there for 6 weeks.

I am STRUGGLING.

My pain is up. My fatigue is WAY up. I feel sick and exhausted in a way I haven't for many months. And it's been going on weeks now.

Can I expect these symptoms to settle once I've finished going through withdrawals? Or is this my life now? Is all this pain just an effect of the taper, or was duloxetine masking the "real" pain all along?

I really want to be med free and I want to fully commit to nervous system work and my healing, but this flare is really knocking my confidence.

TL;DR Can Cymbalta taper cause rebound pain that will eventually go away once I stabilise?

Yesterday, I (33F) finally got diagnosed with fibromyalgia after lots of tests to rule out mainly Psoriatic Arthritis.

I'm relieved, I've done some reading and there's a lot of things that I do recognize from other symptoms. However, I'm also currently being tested for FND and I have autism, and have noticed a lot of overlap between the three. Does anyone else deal with either one of those as well?

How do I handle this with taking next steps in things like therapy? As in, how important is it to find a physiotherapist or therapist or coach or whatever, who understands all three of these things?

Any other tips on how to go from here? Rheumatologist just said to find a physiotherapist but didn't really have any other advice.

Hello 🌼
Does physiotherapy or massage help you? Which kind of massage? Also,how often?
Thank you 🧡

Is it worth going back to work after Medical Leave?

Here's some information:

I'm currently on Medical Leave (Disability) from my first ever job (retail). The payments stabilized from SDI \*California recently, and it seems like I'll get paid $800 a month. That's bi weekly, it seems.

I want to move out soon, but my SSI representative called me the other day and said applications take about a year to get approved.

So that leaves me with \*more\* money than what I worked for before (it fluctuated from ,$40, $60 to $130), but not enough to move out.

Should I go back to work to get more money and deal how much SDI will take out of my disability payment from my retail paycheck, or grit my teeth and continue to live in my current living situation?

has anyone else found they’re losing or lost their sleep routine? any routine at all? time is just blending together, days of the week means nothing, now i can’t even sleep from so much pain and it’s like that doesn’t even matter too. and fuck is my spine killing me

This has been a nightmare! Everything is amplified due to the fibromyalgia -the pain, numbness, burning, itching, and prickly feeling! I can’t imagine ever feeling better, again. (back to baseline). I’m on a ton of meds, staying hydrated, sleeping, and using my ice packs! Any other tips, tricks, or positive experiences making it to the other side of shingles with Fibro?

Just wondering what the normal dose it for fibromyalgia pain is. I just got 100. My that I can increase to 3 a day.

Time to buy a new mattress. Besides fibromyalgia I also have osteoarthritis in my hips, knees, back, neck and hands as well as acid reflux. Trying to find a sleeping position that helps all three ailments is so difficult so I am asking recommendations of a mattress that will help me sleep comfortably. I currently have a temper pedi which was a huge mistake but I do have the adjustable base.

Hi-
I received a diagnosis of fibromyalgia today. I’m questioning it though because my symptoms are not soreness. My main symptoms are severe stiffness throughout my body that doesn’t go away even with exercise, burning and stinging in my back, periods where my back freezes and I can’t move or walk, leg weakness, brain fog (I’m starting to forget how to spell) and debilitating fatigue.

I suffered a massive heart attack in November and now have 3 stents. The fatigue and pain have gotten worse since my heart attack.

Are your symptoms similar to these?

Because it was a Double Sixes day! I had low pain AND executive function! I ran five loads of laundry, put two away, and four sets of dishes (two scrubs of pans and two dishwasher loads)!

It's so damned rare that I feel like doing tasks and also am able to do them. Spend those spoons when you got 'em. I feel bad about playing hooky from work but ya gotta triage this shit.

Im just curious if "grounding" helps with pain? I dont have grass where I live, so I cant test the theory. So I just purchased a grounding mat. Gonna try it for a month to see. Anyone try it before? Or am I just wasting more money?

It's bizarre how quickly we can go from feeling good to hell.

Yesterday I was down bad. My fatigue had me having trouble standing. My weakness made me skip washing my face and doing my nightly routines. I was in bed all day. I had the world crushing my shoulders and squeezing me tight. I was so depressed and felt as if life wasn't worth it. I imagined how my family would take it if I took my own life. How could I explain to them that it was the best thing for me. Don't worry I don't want to die, I'm also in therapy and seeing a psychiatrist. But in these flares nothing else matters, I can't find anything but misery. I feel as if I'll never get better, and I fall on my bed in dread and despair. It's cruel and unfair.

Then I wake up in the morning feeling totally okay. The fatigue is there but not overtaking. The pain is there but not bothersome. I can move without feeling a thousand pounds on my shoulders. The weakness is gone and I can do things. I'm washing my blankets, cleaning my bathroom, playing video games with my mom. Changing my Chickens water. I am okay and I feel as if I have a chance at a normal life. Not perfect, still ill, but I am doing and that's all that matters.

These two things are so opposite of one another it's almost unbelievable. How I can be tortured so terribly one day and then the next it's like it never even happened. Fibromyalgia is cruel and unusual. I am glad I have this communities who understands exactly what I'm talking about.

Thank you for reading.