Original Post:

https://www.reddit.com/r/MadeMeSmile/s/pvsMbXYCKu

My brother Ben has a rare condition called TUBB4A-related leukodystrophy (H-ABC). He's 30 now, but we didn't get a diagnosis until 2024, at 28. For years we had no idea what we were dealing with, or whether anyone else out there had it too.

After the diagnosis, we started searching social media for other families. That's how we found Elouise.

Ben communicates using the tech we built for him, so he and Elouise started texting, and we did a lot of video calls early on. Eventually, it became a dream to actually meet her in person. Ben can't fly, and we didn't have a vehicle that could handle a long drive, so Elouise and her mom flew out to us instead. We spent the whole day together, talking, playing games, and just being friends in person for once. It was everything.

That was almost a year ago.

Since then, we got a new van, and Ben worked hard on building up his stamina for a long drive. This time, we went to them.

It was awesome.

Thank you for watching, and for letting our little story matter to you too.

As I've mentioned before, I work 3 jobs so my wife will often leave me doodles on our front door for me to find upon my return home.

best.wife.ever.

enjoyed the cone!

I'm gonna leave some frog gummybears as a gift for her!

Picture 1&3 shows who we got our love of airplanes from :) I love listening to my dad and Granda talk “shop” about planes and history! Note the radio in picture 3 so we could listen to the arrivals channel.

We were so glad to make it in time to watch the Air France jet land!

My local shelter didn’t have an overnight tech for a few evenings, so they reached out to the foster parents. I am caring for these weaning 4 week old kittens and they are doing great! So tiny but so strong! The black boy wants to loved, cuddled, played with and explore all the time. Learning to care for them makes me so happy. I love the little yells when I come in to give them a meal every few hours. Then they play a tiny bit and pass out. Sweet lil babies.

Feel free to share name ideas! Currently we have Ruth for the tabby in the front of the first photo, Antonio Banderas for the black boy and Maverick for the small brown tabby boy.

I like goose too. Goose is a silly cat name.