And yes I'm in a lot of pain now from sitting to draw. It's probably worth it

35f. 9wpo - had everything removed but the ovaries. Went private as I was told I’d get nowhere with the NHS. Had my first GP appointment post surgery today and prefaced it by saying I’d had a hysterectomy which could be contributing to my symptoms for the issue I was there for.

You’d think I’d committed the most awful of sins!!

His face just dropped and I got a barrage of questions…

You had a what done?
On the NHS?
Then what provider?
Why?
What were your symptoms?
What did they take?
How many children do you have?
What do you mean you have no children?
Have you been pregnant?
Do you have a history of issues with the uterus in your family?
What were your symptoms again?
Have you been pregnant?
You have, but you have no children?
Do you understand it’s a major organ?
And you don’t have children?

Dear lord! God forbid women have bodily autonomy. I said I am very, very happy with my decision and went on to discuss what I was actually there for. Hoping I don’t have to go through this every time I have an appointment now…

American healthcare is quite the experience… went through hell to get approved and will go through hell to pay this off.

I recieved the official lab report today, and I just needed to voice my surprise that my uterus only weighed 52 grams. The organ responsible for ruining most of my life weighs the same as a couple of slices of cheese.

I dont know what I expected it to weigh, but this just seems insulting. HOW!? Hahah

I had my surgery on May 6, 2025, and wanted to come back and share a positive update now that it’s September 1, 2026.
Before surgery, I had adenomyosis, endometriosis, and ovarian cysts, primarily on my right ovary. That ovary had a cyst on it when it was removed. I was bleeding for months at a time without stopping, dealing with horrible pain and cramping, and my quality of life had become pretty terrible.
Now, almost 16 months later, I feel better than ever. I’m pain-free, able to do so much more, and actually enjoying life without constantly having to plan around bleeding or pain.
My only wish is that I could have had the surgery sooner. For me, it’s been the best thing that has ever happened to me. I knew I wanted relief, but being on the other side has made me realize just how much I was living with before.
Everyone’s experience is different, but I wanted to share my success story for anyone who needs a little hope. I’m so grateful to feel this good again. ❤️

Today I had my post op appointment, on week 9.
Everything went really well, thankfully!!

Anyone who is thinking about getting a hysterectomy please take this as a sign to GO FOR IT!!

Sometime we only hear the bad side of whatever we are researching, but it’s really important to share both sides!

- find a doctor who listens
- research your questions, not the answers
- take as much time to recover as you can - I took off 6 weeks, but I was feeling the best after 5.

It wasn’t all roses, I had a really horrid smell, it was really embarrassing!
Also, the weird sensation of the phantom tampon.

Best of luck to all, I hope it goes amazing xoxo

Leaving the house in 10 mins to be at the hospital for 5:30 am check in and 7:30 surgery time. I'm the first patient of the day. Beyond ready for relief and to feel like a person again. Thanks for all the advice and good vibes leading up to today! About to join the hysterectomy sister ranks!

uterus yeeterus
a haiku

vamoose, time to go
you housed two big fat babies
i bid you adieu

Sharing for the women who are in the queue to have hysterectomy or have recently had the surgery. I just did a backpacking trip at 10 weeks post op. I followed the recovery guidelines, but kept moving as much as I could. I was cleared to go back to the gym (with weight, intensity, activity restrictions) at 2 weeks post op. Getting back to the gym was SO helpful. I had to modify, but my trainer worked with me to give me alternate exercises that fit my restrictions. I'm typically an avid hiker, and had to scale way back for this summer, but I didn't have to give it up completely.

If I can give you any helpful hints, it is to get moving as soon as you can. Let your body/pain guide you, and keep within whatever guidance your surgeon has given. Even if it is a leisurely walk around the block, your body will thank you for it.

Good luck fellow hystos. Best decision I've made.

I have tokophobia and need my uterus removed please tell me how to get it removed at this age and what doctors to trust

has been playing nonstop in my head. doo doodoo doo, doodoo doot doodoo…

surgery is tomorrow!!!!!!

I have been so excited and so looking forward to this but also so full of anxious energy and I haven’t been sure why because I am not specifically afraid of surgery

and then I realized it’s because the last time I spent any real time in a hospital, especially with IVs and beeping machines and wheely beds and all that, was nearly two years ago when I was the hospice caretaker for my mom :((

ugh I can’t wait for this to be overrrrr

sorry, I just had to get this off my chest

We have a manual recliner I was considering moving into my room right by the bathroom but now I’m wondering if it’s necessary. I am a bed woman through and through, being in bed on my side is deeply comforting to me. But the other thing is I have a high bed that I cannot sit on and have my feet touch the floor. I got a step stool but I’m still afraid it’s going to be hard to get in and out of bed, but then I saw some people say they couldn’t operate their manual recliner to put the footrest down (for how long?)
Surgery is 9/18. It’s surgery month. Laparoscopic. Hi to all my September sisters.

Looking for my 4 day post full laparoscopic surgery twin🧐🫶🏾🤣So far my day 4 is best day. Still very sore though! No diarrhea anymore. Took a short walk. But still moving like a turtle. Just looking to commiserate🤣🤣

Around 10k 😵‍💫 Plus 4 other medical staff assisting the surgery, separate charges, few thousand each. Crazy...

I've had a pretty uneventful hysterectomy and recovery journey. I was back to driving/working by day 5, and was told I could do basically anything other than heavy lifting or inserting anything into the vagina by my first post op visit (it was somewhere around the 3 week mark).

My next post op is tomorrow (almost to the 7 week mark). Im very excited to hopefully get back to intercourse tomorrow. I'm a little worried because my boyfriend is a bit larger than average in size, but if I am cleared he has agreed to take it easy/slow. We had a very active sex life before so we are both eager to get back to it.

Any suggestions? Im excited and scared.

Has anyone here experienced regret after their hysterectomy? If so, why?

I got diagnosed with a complex, solid, ovarian mass back in June. It’s growing. It’s doubled in size in 10 weeks. It’s secreting hormones. To the point that my blood pressure skyrockets, I feel like I’ve had 6 cups of coffee, and the feminine rage emanating from me would likely kill a man. For months I said something was off, before they found it. My husband said I was just over exaggerating. He FAFO’d.

Had repeat imaging, it grew again. Has its own vascular flow. O-RADS now a 4. This free loading bastard is good chance of malignant AF. It’s going to have to come out. And now, the doctor says safest bet is to take it all out. All the lady bits. Cause it could be aggressive, and the uterus be thicc, so it might be malignant too. Won’t know til they take it all out and do the final pathologies.

And here I am, just now realizing I’m a woman in my mid 40’s, with no children. I spent my life adamantly not wanting to give birth, or to raise another human. And while I think I stand by that decision, I’m now recognizing I never can. And it’s hitting me…hardddd. I’m crying into my feral dinner over babies I’ve never had, never wanted, but will now never even have the ability to have. I feel unbelievably inadequate and sterile. Like we’re all born as inherent mothers, and I’m losing that part. And also terrified of chemo taking my hair. Nor do I do well mentally with several weeks of downtime. Staying busy and outdoor exercise is what keeps me sane.

Anyways, I’d like to name the mass and the thicc uterus, before we yeeterus. Thoughts?

Hi! Haven’t posted in a long while. Just popping in because my 1-year post-op anniversary is tomorrow and I feel like celebrating! Technically my surgery date was 9/2 but it was this Tuesday last year I went in.

Feeling proud to have fought that battle and overcome. Feeling elated that life has returned to normal when I was worried normal would never be the same again. Excited that I still feel whole even though I’m missing parts.

Still have my lap scars but they are super faded and I don’t mind them now. I smile every time I see them. A little happy reminder that I overcame a very terrifying time in my life—huge accomplishment for me with the amount of health anxiety I have. 🙂

Can’t wait for all of you approaching surgery or still healing to feel this same happiness. ❤️ Happy Healing!

Hopping on here to share that since I’ve started tracking my symptoms, I’ve stopped gaslighting myself.

I’m scheduled for a hysterectomy later this year and it’s been difficult for me to admit that it’s necessary. I think when you live with chronic pain it’s easy to tell yourself that what you’re feeling is normal or not that bad.

That being said, hysterectomy is the only way they can perform necessary pathology and treat my symptoms. I’ve had two failed biopsies, because of challenging anatomy and have suspected adeno and endo, yet I still question everything.

Anyways, my whole point is that I started tracking symptoms daily in my notes app. I’m talking cramps, bloating, GI symptoms, migraines, anything that keeps me from feeling like I’m thriving and when I start doubting the direction I’m heading, I reference that list of symptoms. It’s been a good tool to help me recognize all that my body deals with and acknowledge that I deserve a better health outcome.

Thought I’d share, in case others are struggling with their situation.

Sorry for any formatting issues- I tend to lurk more than post but I had a bad day so why not.

For context I am 19 and I have endometriosis- I habe had daily pain since around 10 years of age, shortly after I started having periods I went onto bcps. I habe tried four types of them. Then nearly a year ago I go an iud- in February this year I got an excision of my endometriosis tissue. Today I removed my iud to see if maybe that’s why it still hurts.

It’s always painful never ending it was a 4-6 on bcps- then it slowly went to 4-8, after the iud it was 5-9. After my surgery it went down to a 2-4. Recently my pain has spiked to 7-9 every day and so I finally removed the iud.

I’ve always wanted to remove my uterus at the minimum- I have a deep seeded phobia of pregnancy, I’m pro whatever you wanna do. I just I can’t and with the pain I’m already in I rather try to remove the source.

Today they wanted to increase my medications I’m on and said I needed to try another medication type- pelvic floor therapy, and Botox injections. He said it’s to cover everything to convince my insurance to let me get a hysterectomy but I can’t afford this.

They sent me a referral to a place that’s out of network I told them so many times I’ll do it if it’s covered I can’t do it otherwise and the medication isn’t covered and it’s $65.

I’m afraid none of this will work and they’ll still refuse me because of my age it just why?

Why do I need to jump through so many hoop- hasn’t 9 full years of trying to get better earn me the right to chose what to do to my body to do what I think will help me. I don’t even know if it’s just endo anymore it’s so much worse and sorry I’m rambling.

If anyone read this much thanks for seeing my ramblings.

I started my clear liquid diet today along with MiraLAX prep, I was worried about being hungry but I just got the call to arrive at 5:45am, surgery at 7:30am, I said oh thank goodness it’s early! “You’re the first patient”, yay! I’m set for outpatient but I’m still going to pack a backpack just in case it changes. I’ve got my set-up ready, going to be hanging out in my son’s room since he’s got his small bed in our room and I want to keep meds away plus protect my peace during recovery! Almost GO time 🙌🏼

Update: I’m home!! Thank you so much my official hystersisters/misters 🫶🏼 I’ll post an update later. Good luck to anyone waiting their turns!

I made a post a little while ago about being a bit itchy down there (hair and front areas, sorry don’t know medical names)

But since the post I have noticed it was extremely itchy where they used the medical glue on my laparoscopy sites, and the skin is still slightly puffy and raised, like you’d expect from a allergic reaction.it was really bad when the glue was still there.

So I’m wondering if they use the same glue product on the vaginal cuff? (they removed everything including my cervix)

Could this itching be an allergic reaction? I have experienced no white ’cottage cheese’ type of rash or secretions, tbbh I’ve had nothing at all except the intense itching where I can claw myself raw if I give in to it.

Oddly as an aside, I had a real problem with my hair growing down there prior to the surgery and was practically bald without shaving, now it’s very noticeably more hairy than before, could this have something to do with the itching and is it worth mentioning?

I’m seeing a female GP

Also worth mentioning is I have a serious allergy to lanolin and its dervs, is this present in the glue?

Im 36. Had a hysterectomy last October. Left both ovaries. Ever since, I have been trying to discuss changes in my body with my ob and every time I got dismissed. In June, I went for my annual. And again, I tried to have a conversation. I told her I am hot all the time, I dont sleep well, Im tired all the time, Ive gained 30 pounds despite eating well and being more active than Ive ever been. My hair is falling out by the handful. My legs are restless and itchy. Im cranky and blah and just generally dont feel myself. I asked her about the possibility of trying hrt. She noped me immediately. Said I was young and had my ovaries and it's impossible that they've failed at my age. Its impossible, thats just not how that works. Then she doubled down and told me if I wasnt happy with my weight I should eat less. I thought she had to be joking and I laughed, but she was dead serious. I brought a whole body and mind problem to my doctor and she told me to eat less. End of conversation. I left feeling humiliated and crazy. Last week I decided to make an appointment with my primary. She listened. Shared some personal experiences and recommended a supplement that might help in the meantime/alongside hrt if thats an appropriate avenue. She doesnt really practice women's health so she researched what all labs should be done and ordered all of them. All the basics- vitamin b and d, ferritin, metabolics- came back normal range. Lutienizing hormone came back WAY high, which points to ovarian insufficiency or surgical menopause. Still waiting on the rest of the hormone panel to come back to confirm. Seeing that so high was really bittersweet. Im glad we can move forward treating it and I can feel better. But it sucks that it could've been solved way earlier, and it really sucks to be treated nonchalantly. Maybe one day we will be able to walk into our doctor's appointments confident we will be taken seriously!

Hi all,

I'm 39, total hysterectomy but keeping ovaries. Sugery is scheduled for next Tuesday. I've been lurking here for the last few weeks and decided to post to the community to see if anyone else felt depressed before surgery? I understand that is a loaded and delicate question and all experiences are so very welcome if you are willing to share <3 I have seen some good tips and ideas and most importantly all the reassurances (thank you!) I bought a wedge pillow since I think that would have been nice after the open myomectomy a few years ago (it was supposed to be laparoscopic but the fibroid was too crazy and they had to switch to open). My partner is wfh and will be home all the time after we get back from the hospital, so I'm happy I'll have help. But I am overwhelmed with anxiety about this surgery and I think I've burned myself out with stress. I think it's helped kicked me into depression (along with all the other life stress). Yesterday I slept for 11 hours and felt so listless, and burst into tears throughout the day. I'm happy to be scheduled for a hysterectomy so I don't have to keep dealing with fibroids. I'm grateful I have a surgeon who didn't think twice or try to prevent me from having one as woman that's never had children in a red state (US). I'm grateful I have a better job and I get 7 weeks off of work instead of the 2 weeks last time. Life is going to be so much better, and the best place to have a medical emergency is when you're already in a room full of doctors. Logically I know all this. But I am SO anxious and scared. I have to have a colorectal surgeon present because of adhesions from the myomectomy. I have to get bloodwork and an EKG tomorrow maybe because of my venous reflux/lymphedema from an old leg injury? I have to stay overnight because I'm higher risk because of BMI is what it sounds like. This surgery is supposed to be laparoscopic but I'm worried it'll just turn to open again and it was such a long recovery last time and I lost a lot of blood during that surgery. I'm upset with myself for not knowing if I wanted a hysterectomy or not last time and wish I had just done it then. I have an extra therapy appointment today and we're just going to focus on the surgery and coping mechanisms. But golly I can't wait until this is over and to not have to worry about planning my life around heavy periods and anemia making me dead tired lol. Thank you for taking time to listen to me <3

I switched from pills to patches last week (currently 3.5 weeks post-surgery) and I am STRUGGLING. Weeping, irritable, anxious. Feels like PMDD symptoms. I’m tired and sore and have to go back to work on Thursday. Overall feeling discouraged.

I may try to switch to oral estradiol for steadier delivery, but I have no idea. Maybe I’m just adjusting here and it will even out?

I’m looking for any insights, suggestions, and/or experiences related to HRT after surgery.