And yes I'm in a lot of pain now from sitting to draw. It's probably worth it

35f. 9wpo - had everything removed but the ovaries. Went private as I was told I’d get nowhere with the NHS. Had my first GP appointment post surgery today and prefaced it by saying I’d had a hysterectomy which could be contributing to my symptoms for the issue I was there for.

You’d think I’d committed the most awful of sins!!

His face just dropped and I got a barrage of questions…

You had a what done?
On the NHS?
Then what provider?
Why?
What were your symptoms?
What did they take?
How many children do you have?
What do you mean you have no children?
Have you been pregnant?
Do you have a history of issues with the uterus in your family?
What were your symptoms again?
Have you been pregnant?
You have, but you have no children?
Do you understand it’s a major organ?
And you don’t have children?

Dear lord! God forbid women have bodily autonomy. I said I am very, very happy with my decision and went on to discuss what I was actually there for. Hoping I don’t have to go through this every time I have an appointment now…

I recieved the official lab report today, and I just needed to voice my surprise that my uterus only weighed 52 grams. The organ responsible for ruining most of my life weighs the same as a couple of slices of cheese.

I dont know what I expected it to weigh, but this just seems insulting. HOW!? Hahah

Leaving the house in 10 mins to be at the hospital for 5:30 am check in and 7:30 surgery time. I'm the first patient of the day. Beyond ready for relief and to feel like a person again. Thanks for all the advice and good vibes leading up to today! About to join the hysterectomy sister ranks!

uterus yeeterus
a haiku

vamoose, time to go
you housed two big fat babies
i bid you adieu

has been playing nonstop in my head. doo doodoo doo, doodoo doot doodoo…

surgery is tomorrow!!!!!!

I have been so excited and so looking forward to this but also so full of anxious energy and I haven’t been sure why because I am not specifically afraid of surgery

and then I realized it’s because the last time I spent any real time in a hospital, especially with IVs and beeping machines and wheely beds and all that, was nearly two years ago when I was the hospice caretaker for my mom :((

ugh I can’t wait for this to be overrrrr

sorry, I just had to get this off my chest

Around 10k 😵‍💫 Plus 4 other medical staff assisting the surgery, separate charges, few thousand each. Crazy...

I had my surgery on May 6, 2025, and wanted to come back and share a positive update now that it’s September 1, 2026.
Before surgery, I had adenomyosis, endometriosis, and ovarian cysts, primarily on my right ovary. That ovary had a cyst on it when it was removed. I was bleeding for months at a time without stopping, dealing with horrible pain and cramping, and my quality of life had become pretty terrible.
Now, almost 16 months later, I feel better than ever. I’m pain-free, able to do so much more, and actually enjoying life without constantly having to plan around bleeding or pain.
My only wish is that I could have had the surgery sooner. For me, it’s been the best thing that has ever happened to me. I knew I wanted relief, but being on the other side has made me realize just how much I was living with before.
Everyone’s experience is different, but I wanted to share my success story for anyone who needs a little hope. I’m so grateful to feel this good again. ❤️

Looking for my 4 day post full laparoscopic surgery twin🧐🫶🏾🤣So far my day 4 is best day. Still very sore though! No diarrhea anymore. Took a short walk. But still moving like a turtle. Just looking to commiserate🤣🤣

I got diagnosed with a complex, solid, ovarian mass back in June. It’s growing. It’s doubled in size in 10 weeks. It’s secreting hormones. To the point that my blood pressure skyrockets, I feel like I’ve had 6 cups of coffee, and the feminine rage emanating from me would likely kill a man. For months I said something was off, before they found it. My husband said I was just over exaggerating. He FAFO’d.

Had repeat imaging, it grew again. Has its own vascular flow. O-RADS now a 4. This free loading bastard is good chance of malignant AF. It’s going to have to come out. And now, the doctor says safest bet is to take it all out. All the lady bits. Cause it could be aggressive, and the uterus be thicc, so it might be malignant too. Won’t know til they take it all out and do the final pathologies.

And here I am, just now realizing I’m a woman in my mid 40’s, with no children. I spent my life adamantly not wanting to give birth, or to raise another human. And while I think I stand by that decision, I’m now recognizing I never can. And it’s hitting me…hardddd. I’m crying into my feral dinner over babies I’ve never had, never wanted, but will now never even have the ability to have. I feel unbelievably inadequate and sterile. Like we’re all born as inherent mothers, and I’m losing that part. And also terrified of chemo taking my hair. Nor do I do well mentally with several weeks of downtime. Staying busy and outdoor exercise is what keeps me sane.

Anyways, I’d like to name the mass and the thicc uterus, before we yeeterus. Thoughts?

I've had a pretty uneventful hysterectomy and recovery journey. I was back to driving/working by day 5, and was told I could do basically anything other than heavy lifting or inserting anything into the vagina by my first post op visit (it was somewhere around the 3 week mark).

My next post op is tomorrow (almost to the 7 week mark). Im very excited to hopefully get back to intercourse tomorrow. I'm a little worried because my boyfriend is a bit larger than average in size, but if I am cleared he has agreed to take it easy/slow. We had a very active sex life before so we are both eager to get back to it.

Any suggestions? Im excited and scared.

I started my clear liquid diet today along with MiraLAX prep, I was worried about being hungry but I just got the call to arrive at 5:45am, surgery at 7:30am, I said oh thank goodness it’s early! “You’re the first patient”, yay! I’m set for outpatient but I’m still going to pack a backpack just in case it changes. I’ve got my set-up ready, going to be hanging out in my son’s room since he’s got his small bed in our room and I want to keep meds away plus protect my peace during recovery! Almost GO time 🙌🏼

Update: I’m home!! Thank you so much my official hystersisters/misters 🫶🏼 I’ll post an update later. Good luck to anyone waiting their turns!

Im 36. Had a hysterectomy last October. Left both ovaries. Ever since, I have been trying to discuss changes in my body with my ob and every time I got dismissed. In June, I went for my annual. And again, I tried to have a conversation. I told her I am hot all the time, I dont sleep well, Im tired all the time, Ive gained 30 pounds despite eating well and being more active than Ive ever been. My hair is falling out by the handful. My legs are restless and itchy. Im cranky and blah and just generally dont feel myself. I asked her about the possibility of trying hrt. She noped me immediately. Said I was young and had my ovaries and it's impossible that they've failed at my age. Its impossible, thats just not how that works. Then she doubled down and told me if I wasnt happy with my weight I should eat less. I thought she had to be joking and I laughed, but she was dead serious. I brought a whole body and mind problem to my doctor and she told me to eat less. End of conversation. I left feeling humiliated and crazy. Last week I decided to make an appointment with my primary. She listened. Shared some personal experiences and recommended a supplement that might help in the meantime/alongside hrt if thats an appropriate avenue. She doesnt really practice women's health so she researched what all labs should be done and ordered all of them. All the basics- vitamin b and d, ferritin, metabolics- came back normal range. Lutienizing hormone came back WAY high, which points to ovarian insufficiency or surgical menopause. Still waiting on the rest of the hormone panel to come back to confirm. Seeing that so high was really bittersweet. Im glad we can move forward treating it and I can feel better. But it sucks that it could've been solved way earlier, and it really sucks to be treated nonchalantly. Maybe one day we will be able to walk into our doctor's appointments confident we will be taken seriously!

Hi all,

I'm 39, total hysterectomy but keeping ovaries. Sugery is scheduled for next Tuesday. I've been lurking here for the last few weeks and decided to post to the community to see if anyone else felt depressed before surgery? I understand that is a loaded and delicate question and all experiences are so very welcome if you are willing to share <3 I have seen some good tips and ideas and most importantly all the reassurances (thank you!) I bought a wedge pillow since I think that would have been nice after the open myomectomy a few years ago (it was supposed to be laparoscopic but the fibroid was too crazy and they had to switch to open). My partner is wfh and will be home all the time after we get back from the hospital, so I'm happy I'll have help. But I am overwhelmed with anxiety about this surgery and I think I've burned myself out with stress. I think it's helped kicked me into depression (along with all the other life stress). Yesterday I slept for 11 hours and felt so listless, and burst into tears throughout the day. I'm happy to be scheduled for a hysterectomy so I don't have to keep dealing with fibroids. I'm grateful I have a surgeon who didn't think twice or try to prevent me from having one as woman that's never had children in a red state (US). I'm grateful I have a better job and I get 7 weeks off of work instead of the 2 weeks last time. Life is going to be so much better, and the best place to have a medical emergency is when you're already in a room full of doctors. Logically I know all this. But I am SO anxious and scared. I have to have a colorectal surgeon present because of adhesions from the myomectomy. I have to get bloodwork and an EKG tomorrow maybe because of my venous reflux/lymphedema from an old leg injury? I have to stay overnight because I'm higher risk because of BMI is what it sounds like. This surgery is supposed to be laparoscopic but I'm worried it'll just turn to open again and it was such a long recovery last time and I lost a lot of blood during that surgery. I'm upset with myself for not knowing if I wanted a hysterectomy or not last time and wish I had just done it then. I have an extra therapy appointment today and we're just going to focus on the surgery and coping mechanisms. But golly I can't wait until this is over and to not have to worry about planning my life around heavy periods and anemia making me dead tired lol. Thank you for taking time to listen to me <3

Hopping on here to share that since I’ve started tracking my symptoms, I’ve stopped gaslighting myself.

I’m scheduled for a hysterectomy later this year and it’s been difficult for me to admit that it’s necessary. I think when you live with chronic pain it’s easy to tell yourself that what you’re feeling is normal or not that bad.

That being said, hysterectomy is the only way they can perform necessary pathology and treat my symptoms. I’ve had two failed biopsies, because of challenging anatomy and have suspected adeno and endo, yet I still question everything.

Anyways, my whole point is that I started tracking symptoms daily in my notes app. I’m talking cramps, bloating, GI symptoms, migraines, anything that keeps me from feeling like I’m thriving and when I start doubting the direction I’m heading, I reference that list of symptoms. It’s been a good tool to help me recognize all that my body deals with and acknowledge that I deserve a better health outcome.

Thought I’d share, in case others are struggling with their situation.

54f full laparoscopic hysterectomy in Jan with a repair of a complete cuff failure in June. I've always been slim and very active with a flat stomach. Obviously I'm not as active this year so it's no surprise that I'm softer in the middle. But lately I've noticed that my abdomen is very round and protruding in a self contained way, and also my belly button is almost an outie. Is this a thing? Could it be a hernia from multiple surgeries? It is not painful. I've got a note in to my doctor about it. My weight has been stable, and I've just restarted at the gym.

I had a robotic total hysterectomy, both fallopian tubes and ovaries removed, including a 10.6cm ovarian cyst, and deep infiltrating endometriosis excision. For me the worst part of recovery had been the co2 gas and severe postoperative nausea. I don’t think I was fully prepared for the pain of that gas!!!! It was brutal!!! I did a lot of walking because that was the only thing that helped me. I told my dr prior to surgery that I was worried about postoperative nausea and I wish they would have been more aggressive in dealing with it but it’s finally getting better. I started eating solids yesterday. My dr gave me prochlorperazine to help with the nausea. The side effects landed me in the ER, chest heaviness/pressure, racing heart/palpitations, extreme lethargy and confusion. I do NOT recommend taking that medication!!! I’ve looked into it a little since that trip to the ER but I had to stop because it was giving me crazy anxiety. As for postoperative surgical pain, it’s been minimal. If you have been living with adenomyosis or endometriosis or both, like me, your pelvic pain tolerance is most likely remarkably high. I keep waiting for the real pain to hit me but I’m guessing it already has. So far my take away is, the co2 gas will be your worst enemy, if you are prone to nausea, demand a proactive approach and don’t take prochlorperazine, and the surgical pain will be comically less than your preoperative pain if you have been living with adenomyosis and/or endometriosis.

Going on 11 days now lol. How long did you give it before you started going back to normal life? How many days did you spend in bed doing sweet FA? Just started a 13 season show so I could be here for the long haul 😅

I'm nervous, surgery is next week, so it's feeling more real now. Classes start tomorrow. I've reached out to my professors and will be able to attend lectures online for a couple weeks, and they're all great about giving assignment information well ahead of due dates, so I should be able to stay on track. I don't have a regular job, but I am a research assistant and will need to continue that work through recovery as well. It's just feeling like a lot all of a sudden, and I'm not sure how to handle it. Four classes, all with group work, and 10 hours a week of coding survey responses.

I've had two other laparoscopic gynecological surgeries--endometrioma removal and then removal of the offending ovary a year later. My recoveries were extremely easy, but they were 5 and 6 years ago when I was still basically a professional athlete (circus performer). I'm in shape, honestly probably a lot healthier than I was then, but I'm 38 now and it feels different.

It feels like I should be blase about this, I'm going back to class, not hanging upside down by one hand 50 feet from the ground. But I'm worried that I'm overestimating my post surgery abilities.

I was single for those earlier surgeries, so I could just hang out alone in my room without worrying about anyone fussing over me or worrying about feeling responsible for another person's wellbeing. We're both neurodivergent. When I don't feel well I don't want to be perceived. My partner knows this, but I know that he's going to have feelings about me wanting to be ignored that are going to be hard for me to deal with. It's ridiculous and he's great, but I don't want to deal with his disapproval of me not wanting any of his electrolytes drinks or spending a lot of time on the couch with him. He's going to try to do all the great partner things, but I'm going to feel like it's an intrusion. The way it was scheduled, he would have been able to pick me up from the hospital after work, but he scheduled the full day off anyways, and that just makes me anticipate the feeling of intrusion. But like, he's just being a good and helpful partner.

And I'm just nervous in general.

I guess I'm just venting

I had a total hysterectomy back in May, left only my ovaries. Healing hasn't been a particularly linear journey, but I had been progressing well, back to enjoying my life without restrictions. Last Thursday i began spotting -old coffee ground looking blood- no fever, but an ever growing fiery pain in my pelvis which has expanded to include my abdomen. My pelvic floor muscles are on guard and I genuinely feel like I have just gone through the trauma of a vaginal birth.

I was able to see my surgeon today and there is no issue with the cuff, it felt fine on examination, not torn or tender. There was blood present, but they could not identify the source. Ultrasound is scheduled for tomorrow...

I am spiraling, catastrophizing that it's probably an endo flare up and I am just destined to feel this terrible for the rest of my life.

My doctor said its unlikely endo would have returned this fast and extreme - but what else could cause this feeling?

What are your experiences? Tell me your stories Internet strangers!

Hi everyone ,

I've been lurking ... to kind of prepare myself as I do know I will be having a total hysterectomy due to my problem. I suffered from endometriosis and pcos what feels like since I started me period at 9 yrs old. Im 47... without going onto a long story on how i got to where I am now.. ill spare the details of medically struggling to be heard all these years

..decades even. Fast forward to now upon discovery I had an 10 centimeter mass on my left ovary and 2 cm hemmoragic cyst on the right and riddled with scarring ... thos was 8 weeks ago..since then mass has grown to 11.5 .. I talk with my oncologist gynecologist on the 3rd ... Hopefully he will say its a go and soon. But today I go for contrast and noncontrast MRI assuming they want a closer look to see if anything is entangled with any other organs and etc. Please wish me luck?!?!? And bravery because MRI ' s terrify me ..( claustrophobic and am i the only one ) can I ask for some calming meds before I go in ?? Anyways .. upon all this they found out I have liver failure ..no alcoholic..noncontagious hepatitis cirrhosis.. happens that I won't the "lottery" in the dept as to 20 out of 100,000 people are diagnosed. Autoimmune disease that attacked the red blood cells of my liver since God knows when.

Im afraid of thos hindering him operating... has anyone else had multiple issues that paused surgery ? Or prolonged it ? This mass is growing and I feel taking it out will help me deal with the other side more efficiently... we do not know if its benign or malignant because I asked them once they take it all out then they can test it ... (why suffer with biopsies and such when its all coming out) he did however say it will not be done laproscopic but "old school" way is the term he used .. thanks for listening and any given insight...and luck and prayer you send my way.

Much love ❤️

Has anyone here experienced regret after their hysterectomy? If so, why?